What does it mean to suddenly identify with a group you never thought you’d become part of - and how to begin turning those challenges into opportunities for greater communal consciousness?

Erica and India are joined by Hannah Lowe Corman, co-founder, and president of L-CMD Research Foundation. According to Hannah, 7,000 diseases currently classify as rare, meaning fewer than 200,000 cases recorded in the US. Her son, Austin, is one of those affected.

Hannah shares the ways in which Austin’s reality has shaped her allyship both with families navigating rare diseases as well as with fellow members of Pause On The Play The Community.

In this discussion:

• About LMNA-related congenital muscular dystrophy
• Navigating the logistical aspects of setting up a non-profit
• Humanizing foundations
• Exploring the energetic ties that bind communities and inspire action
• Riding the “bar graph of emotional capacity”
• Reframing mission statements to purpose statements 
• Resources for vetting and giving to non-profit organizations

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Visit the website for the full articles at https://www.pauseontheplay.com/show

Website: https://www.lcmdresearch.org

IG: https://www.instagram.com/lcmd.foundation

Twitter: https://twitter.com/FoundationLcmd

Facebook: https://www.facebook.com/LCMD.foundation

Hannah Lowe Corman is the co-founder and president of the L-CMD Research Foundation, which she helped establish in order to urgently translate scientific research into treatments and ultimately a cure for this fatal childhood disease. She is also an independent artist and yoga teacher living and working in Houston, Texas with her husband and two sons. In what seems like a prior life, she was a healthcare banker helping nonprofit healthcare institutions obtain financing.

Visit pauseontheplay.com/community for details about our latest workshops and information on how you can join us. 

Learn more about LMNA-related congenital muscular dystrophy and give if you can at lcmdresearch.org.

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