{"type":"rich","version":"1.0","provider_name":"Transistor","provider_url":"https://transistor.fm","author_name":"Epilepsy Sparks Insights","title":"Fewer Seizures, But at What Cost? - Matilda Modigh, Epilepsy Specialist Nurse","html":"<iframe width=\"100%\" height=\"180\" frameborder=\"no\" scrolling=\"no\" seamless src=\"https://share.transistor.fm/e/3ca3ab50\"></iframe>","width":"100%","height":180,"duration":1442,"description":"Can fewer seizures sometimes come at the expense of quality of life? Epilepsy Specialist Nurse (ESN) Matilda Modigh goes into the challenges of living with drug-resistant epilepsy, surprising, positive findings about children's experiences of long-term video EEG monitoring (they appreciated it!), and the balance between seizure control, medication side effects and wellbeing. Discover how ESNs support independence, safety, mental health, and quality of life.\nThis episode is sponsored by the Drug-Resistant Epilepsy Course organised by the Spanish Epilepsy Society - supporting education and public understanding of epilepsy: https://2026.drugsresistantepilepsy.com\nChapters 📖\n00:00 Trailer & intro\n00:54 Meet Matilda Modigh\n01:38 Life beyond seizures: sleep, behaviour & wellbeing\n04:34 Epilepsy, education & child development\n05:22 Long-term video EEG monitoring\n07:24 Surprising findings: what children really thought\n08:49 Quality of life beyond seizure control\n09:38 Living with epilepsy: independence & everyday life\n11:33 Transitioning from paediatric to adult epilepsy care\n13:20 Epilepsy safety, mental health & support\n14:58 Fewer seizures, but at what cost?\n17:22 The importance of consistent epilepsy nursing care\n19:17 Listening to people's emotional needs\n21:11 Supporting independence in young people\n22:09 Improving quality of life with uncontrolled seizures\n23:17 Closing thoughts & thanks\n🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/epilepsy-nurse-eeg-seizure-control\n🌐 More about Matilda epilepsysparks.com/guests/matilda-modigh\n🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights\n🎥 Watch on YouTube youtu.be/IzwsZyJDRdg\n🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary\n📲 Join us on social media!\n〰️ LinkedIn epilepsy-sparks\n〰️ Instagram epilepsysparks\n〰️ Facebook epilepsysparks\n〰️ TikTok epilepsysparks\n〰️ Bluesky epilepsysparks​","thumbnail_url":"https://img.transistorcdn.com/ETcVcvJ4VhVWwS3naEn8WMtHF9g3yTGGq7gx0U5XJZo/rs:fill:0:0:1/w:400/h:400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS9jMzZm/NGY5NWZmMTgxMGZi/MjE0ODNkMjI2NGRk/YjJjNC5qcGc.webp","thumbnail_width":300,"thumbnail_height":300}