{"type":"rich","version":"1.0","provider_name":"Transistor","provider_url":"https://transistor.fm","author_name":"Impactful Breakthroughs","title":"Kate Stratton - Executive Director, Lipodystrophy United","html":"","width":"100%","height":180,"duration":1522,"description":"What does it look like to truly amplify the voices of those suffering from a rare disease, especially when you yourself have such a personal connection? On this episode of Impactful Breakthroughs, Zach Gobst sits down with Kate Stratton, Executive Director of Lipodystrophy United, a patient-driven global community dedicated to improving the lives of those affected by lipodystrophy through advocacy, community, and research.\n\nKate shares how her empathetic approach to patient advocacy was shaped. From her own mother’s experience navigating a 37-year diagnostic odyssey, to her experiences working with Planned Parenthood and asylum seekers, she emphasizes the importance of direct conversations rather than assumptions. You’ll also hear Kate’s journey navigating imposter syndrome and her advice for any young entrepreneurs out there looking to make their ideas a reality. \n\nThis conversation is a testament to what happens when personal experience, genuine empathy, and a refusal to wait for permission all come together in one person.\n\nTimestamps\n00:00 Episode Start\n01:55 Kate's personal path into patient advocacy\n04:15 Lipodystrophy and how it affects the body\n07:00 The common thread across all advocacy work\n09:25 Patient voices matter most\n12:15 Ensuring no one gets put in the wrong box\n14:45 Being a young leader and navigating imposter syndrome\n16:20 What Kate has learned from openness and collaboration\n19:15 What's next for Lipodistrophy Untied\n21:45 Kate’s advice for younger generations\n\nKey Takeaways\nOne patient's experience is not a population. Kate is emphatic that true patient-centricity means continuously expanding the network of voices you listen to rather than relying on a single story or a token representative. After two years leading Lipodystrophy United, she still learns something new every time she speaks with a community member.\nAmplify, don't replace. Kate's approach to advocacy across immigration, health policy, and now rare disease, has always been the...","thumbnail_url":"https://img.transistorcdn.com/uUl5NjCb9mY4i46LGv4GWJrr5WVj3WxuYTgjBphYmcc/rs:fill:0:0:1/w:400/h:400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS85MDM0/ZDk5OWI2YTcwYWRh/NTM0NzIyODViMjU4/ODlmZS5wbmc.webp","thumbnail_width":300,"thumbnail_height":300}