{"type":"rich","version":"1.0","provider_name":"Transistor","provider_url":"https://transistor.fm","author_name":"Sounds of Science","title":"Finding Hope in the Rare: Jane’s Story and the Fight for Mowat-Wilson Syndrome Research ","html":"<iframe width=\"100%\" height=\"180\" frameborder=\"no\" scrolling=\"no\" seamless src=\"https://share.transistor.fm/e/a35b52be\"></iframe>","width":"100%","height":180,"duration":2253,"description":"In this episode of Sounds of Science, Lauren and Matt Noonan share their powerful journey following their daughter Jane’s diagnosis with Mowat-Wilson Syndrome. From unexpected medical challenges to finding community and launching their own nonprofit, the OURS Foundation, they discuss how advocacy, collaboration, and emerging research are shaping new hope for families living with rare diseases. \nCharles River | ASO Development \nCharles River | ASO Screening Services \nCharles River | Rare Disease \nCharles River | Rare Disease Research for Drug Development \nMowat Wilson Foundation","thumbnail_url":"https://img.transistorcdn.com/ZE2zIMlSzoDJ-xSt26RohDaQEx1CXFTXmgj7dMpX-dk/rs:fill:0:0:1/w:400/h:400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS9hNjhm/NWQ0NDVmNDY1Njcw/NGJmMzBkMTg3OWQ3/MTdmYy5wbmc.webp","thumbnail_width":300,"thumbnail_height":300}