{"type":"rich","version":"1.0","provider_name":"Transistor","provider_url":"https://transistor.fm","author_name":"Veteran's Affairs Plus W/ David L. Washington","title":"Sickle Cell Advocacy in Nevada: Supporting Patients, Families, and Community","html":"<iframe width=\"100%\" height=\"180\" frameborder=\"no\" scrolling=\"no\" seamless src=\"https://share.transistor.fm/e/bea71294\"></iframe>","width":"100%","height":180,"duration":1775,"description":"This episode of Veterans Affairs Plus brings together advocates and organization leaders working to improve life for Nevadans with sickle cell disease. Georgene Glass shares the history of Dream Sickle Kids Foundation, founded in 2018 to support children, families, and the broader sickle cell community, while Ingrid Williams reflects on the state's earlier advocacy efforts around newborn sickle cell testing and the ongoing need for medical-community education. Pamela White, of BTG Adult Sickle Cell, describes the day-to-day realities facing patients and caregivers—from pain crises and interrupted employment to insurance barriers and the transportation, food, rent, burial, and prescription assistance her organization provides. The conversation also highlights recent wins, including Nevada's AB 254 and a five-year federal HRSA grant, alongside community fundraising efforts like a golf tournament that has raised over $5,000 and the upcoming ninth annual Las Vegas Sickle Cell Walk at Lorenzi Park. Throughout, guests urge patients and families to seek support and call for greater awareness, funding, and compassionate care across the state. ","thumbnail_url":"https://img.transistorcdn.com/RJg4O-raB8IwvfFlXieEy4X5NJFhQ7KRhFge_4_IIaQ/rs:fill:0:0:1/w:400/h:400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS9zaG93/LzI1NTkxLzE2NTY2/MjY3NDItYXJ0d29y/ay5qcGc.webp","thumbnail_width":300,"thumbnail_height":300}