{"type":"rich","version":"1.0","provider_name":"Transistor","provider_url":"https://transistor.fm","author_name":"Coffee & Community: Cutaneous Lymphoma Conversations","title":"From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald","html":"<iframe width=\"100%\" height=\"180\" frameborder=\"no\" scrolling=\"no\" seamless src=\"https://share.transistor.fm/e/e0113e50\"></iframe>","width":"100%","height":180,"duration":1557,"description":"summary\nIn this episode of Coffee and Community, host Holly Priebe speaks with Allison Fitzgerald, Director of Operations for GlobalSkin, about the GRIDD and PRIDD projects aimed at improving quality of life for individuals living with skin diseases, including cutaneous lymphoma. They discuss the importance of patient-centric data, the development of an app for tracking the impact of skin diseases, and the future plans for research and advocacy. The conversation also addresses patient privacy concerns and the significant role of mental health in managing skin conditions.\nTo learn more about the CLFoundation's participation in GlobalSkin's GRIDD & PRIDD projects please visit our website at GlobalSkin | Cutaneous Lymphoma Foundation\nTo review the seven publications produced and published by GlobalSkin visit their website at Resources & Publications\nTo download and begin using the PRIDD app visit the PRIDD website at Download App | PRIDD\n \ntakeaways\nGlobal Skin aims to turn qualitative data into quantitative data.\nThe GRIDD project focuses on understanding the burden of dermatological diseases.\nPRIDD is a new measure that includes patient input.\nPatients need to communicate their full experience beyond physical symptoms.\nThe PRIDD app allows patients to track their health and discuss it with providers.\nHealthcare providers need to be educated about the PRIDD app.\nFuture research will utilize GRIDD and PRIDD data for advocacy.\nMental health is a significant concern for patients with skin diseases.\nPatient participation in research is crucial for meaningful outcomes.\nData security and privacy are prioritized in the app's design.\nChapters\n00:00 Introduction to Global Skin and GRID Projects\n03:00 Understanding PRIDD and Its Importance\n05:04 Using the PRIDD App for Patient Empowerment\n07:53 Healthcare Provider Engagement and Education\n11:31 Future Plans for Global Skin and GRID\n14:24 Patient Privacy and Data Security Concerns\n18:52 The Importance of Research...","thumbnail_url":"https://img.transistorcdn.com/ohJty2uz38ziShPo3VY6ikeHhLW3XwRh7e3pa76JHs4/rs:fill:0:0:1/w:400/h:400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS9lN2Q5/Zjg0OWNjNDZiODY0/YzUyNDA4ODg3ZjQw/ZDZkMy5wbmc.webp","thumbnail_width":300,"thumbnail_height":300}