GearUp4CF - Why I Ride

Todd, a CF patient, tells his story.

Show Notes

Todd was diagnosed with Cystic Fibrosis at a young age. He lived a relatively normal life through his teens and into University. Recently, being hospitalized, he was given Trikafta and saw a massive improvement. Listen to his story. Bonus, during the taping of this podcast, the Cystic Fibrosis drug Trikafta is now approved in Canada for Doctors to prescribe. This is a HUGE victory, but there is still more work to be done. The drug is available, but depending on your insurance provider, there is a cost.

WHAT CAN YOU DO TO ADVOCATE FOR ACCESS TO TRIKAFTA?

Stand up and make your voice heard. We need a commitment from provincial governments to expedite price negotiations and then immediate list of Trikafta after drug reviews are completed. Ways that you can help:
  • Sign the petition to tell your province to end the wait for life-saving CF drugs.
  • Send a letter to your provincial elected official
  • Join our National Advocacy Network.
  • Share your access stories on social media using #cfcantwait, and tag your elected officials.
  • Write to and meet with your provincial and federal elected officials. CF Canada’s advocacy toolkit will help you have these conversations.
  • Sign up for ‘The Advocacy Brief’ e-newsletter to get advocacy updates, including news about access to Trikafta, delivered straight to your inbox. 

What is GearUp4CF - Why I Ride ?

This uplifting podcast will bring you into the life and families of those with Cystic Fibrosis. This includes a collection of interviews featuring Riders, Volunteers and Families involved with the annual ride for GearUp4CF, and the Cystic Fibrosis community. Their personal stories share how this genetic disease affects families, the struggles of daily living, and the journey to finding a cure.