National MPS Society: Our Voices

In this episode:
  • Fanny shares her diagnostic journey to her diagnosis. She is from a large family in Chicago. 
  • A large family meant a lot of family gatherings for Fanny, and she refused to let her mobility issues keep her from them. This is an issue that affects a lot of people with mobility issues, especially during the holiday season.
  • With her mother not speaking English, when Fanny was a child, she learned early to advocate for herself as she translated for her mother during doctor appointments.
  • Fanny shares her experience during college. She knew a large campus would be impossible for her, so she found a college in Texas where the building was only three floors and not as expansive as other campuses. 
  • She shares about overcoming other people's perceptions. And how she learned to overcome her embarrassment of using a wheelchair.

The  National MPS Society exists to cure, support, and advocate for MPS and ML.
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What is National MPS Society: Our Voices?

We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys.

The National MPS Society exists to cure, support and advocate for MPS and ML.