"The Importance of Hearing From Caregivers About Their Needs…"

Welcome to Connecting ALS. This week, Mike and Jeremy are joined by Dr. Sarah Parvanta, director of ALS Focus, to learn how the voices of ALS caregivers are being elevated to make sure services and programs are tailored to their needs.

Show Notes

This week, Mike and Jeremy are joined by Dr. Sarah Parvanta, director of ALS Focus, to learn how the voices of ALS caregivers are being elevated to make sure services and programs are tailored to their needs.

To learn more about the ALS Focus, go to https://www.als.org/research/als-focus

To register for ALS Focus or to log in to participate in the current survey, go to https://www.neuroserver.org/als-focus/Home/login

Check out the results of previous ALS Focus surveys at  https://www.als.org/research/als-focus/survey-results

This episode was produced by Garrett Tiedemann and is brought to you by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. 

What is Connecting ALS?

Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.