'What do you mean you don't have a stomach?' This is a question our very first podcast guest Julian Grennell often encounters, and a reality he shared with many other members of his family after discovering they all carry the rare genetic mutation of CDH1 Hereditary Diffuse Gastric Cancer. We dive into life post total gastrectomy and how Julian was inspired by his diagnosis to challenge himself by pursuing endurance events. Through his journey he has questioned the support available for cancer patients and their families, and as such launched himself into advocating for the Not for Profit sector, recently becoming the president of NZ Cancer Society.
What is A Rare Purpose?
In rarity we unite, connect and find our way to purpose.