Managing emotions as a parent when your child receives a complex medical diagnosis can be incredibly challenging. In this episode of Raising Joy, we talk to Katie Senter, a member of the Family Advisory Council at Cook Children's. Katie's daughter, Louise, has a very rare medical condition called 1p36 deletion syndrome, which is a chromosome disorder that typically causes severe intellectual disability.
Katie shares her personal experiences of coping with Louise's diagnosis, and offers practical advice on how other parents can manage their own emotions during this difficult time. She also talks about the importance of finding support from other parents who are going through similar experiences.
If you're a parent who is struggling to cope with your child's complex medical diagnosis, this episode is for you. Katie's story is both inspiring and informative, and her advice can help you on your own journey.
Listen to this episode of Raising Joy to learn more about:
· Katie's experience of receiving Louise's diagnosis and how she coped with her emotions.
· Practical advice on how to manage your own emotions as a parent of a child with a complex medical diagnosis.
· The importance of finding support from other parents who are going through similar experiences.
What is Raising Joy?
Raising Joy is part of Cook Children’s Joy Campaign, which aims to encourage hope and resilience among children and teens. Cook Children’s Health Care System is located in Fort Worth, Texas and has seen the mental and emotional toll the COVID-19 pandemic has taken on children and their families. In this podcast, hosts Wini King and Dr. Kristen Pyrc explore topics of anxiety, stress, depression, trauma and suicide in order to bring hope and needed resources to struggling children and families. Raising Joy is produced by the public relations team at Cook Children’s. The theme music was created by Raymond Turner from the Sparklefly Recording Studio at Cook Children’s.
Disclaimer: The opinions and advice provided by our guests are not endorsed by Cook Children’s. If you
or someone you know are struggling, please reach out for professional help. Cook Children’s has a list of crisis contact information for youth and families on its website: cookchildrens.org/joy.