Ehlers-Danlos Syndrome

Erin Bafunno, DPT, Nicole Gardner, DPT, and Adrienne Loukopoulos, MSOT discuss Ehlers-Danlos Syndrome, known as EDS. Patients affected by this disease face a unique challenge; the therapists talk treatment and try to raise awareness about EDS.

Show Notes

What is Ehlers-Danlos Syndrome, what are the diagnosis requirements (1:37)? What signs can you look for if you think you or a loved one might have EDS (7:15)? What are PTs and OTs looking at as warning signs of EDS, what is the Beighton scale, and the 5 part questionnaire for EDS (11:18)? We discuss the postural orthostatic tachycardia syndrome (POTS) relationship to EDS (15:50). Then we dive into the treatment of patients with EDS and the communication needed between healthcare providers for a successful treatment strategy (17:50). Resources for those with EDS and the importance of finding a supportive community (32:45).

What is Freedom Talks?

We set out to talk with physical and occupational therapists, along with other healthcare providers about the state of healthcare, hot button topics, and treatment options in different healthcare segments.