A Fathers Search For a Cure - Rare Genetic Disease - Casey Mcpherson

Show Notes

To join our private health community. Check out https://www.beyondmedicinegroup.com/

Casey Mcpherson is a Musician and Artist on a mission to find a cure for his daughter Rose. Rose is a 6-year-old girl who was born with a rare genetic disease. Faced with a grim prognosis, Casey set out on a path to find a cure for his daughter by starting a lab a building a team to find a cure.

You can learn more about Rose here at the To Cure a Rose Foundation. To connect with Casey, you can find him on Linkedin here. https://www.linkedin.com/in/caseymcpherson/

Episode Notes:
1. What is the story of Casey and Rose. 
2. The problem with rare genetic disease funding.
3. Running a genetic disease research company.
4. The moment of diagnosis. Facing denial. Grieving. Finding Purpose. 
5. What is Rose like.
6. The problems of finding a cure for rare genetic diseases. 
7. How does gene therapy work?
8. What Casey has learned in this process. 

What is Beyond Medicine?

Beyond Medicine is a healthcare community podcast focused on exploring the cutting edge of science & medicine, & learning from todays leaders. Our host, Dr. Rami Wehbi is a Physician interested in innovation, science and solving the most pressing issues in healthcare.