Subscribe
Share
Share
Embed
Welcome to this bonus episode of Rare and Relevant TL;DR!
Our regular episode this week, the week of the 24th of May 2023 features a chat with Dr. Nicola Garnier of Screen4Care. Go check that episode out to hear our discussion about new-born screening.
Now, whether this is your first or fifth episode, thanks for being here! It means a lot to me and the folks whose news, events, and guest appearances are featured in this podcast. If you’d like to share something with us or share a voice message, check the show notes for details on how to make contact.Below are links to the information mentioned in this episode.
For folks who would like to check out Kimberly's Social Health Awards profile page, you can do so here: https://www.wegohealth.com/KimberlyT11.
PKU Info
2022 Canadian ALS Awareness
Beacon for Rare Events
Lee Reavey & Taylor Kane interview with Pam Cusick of RPV
CamRare Fun Run
Social Health Award Nominees
Rare Disease in America Survey
Hanson-Wade Conferences in June
Duchenne Care Conference (Online)
World without Disease tickets
4 Year-Old Paxton Participates in Dravet Drug Trial
FNIH Accelerates Medicines Partnership
The Death of a Metaverse
There are now 10k rare diseases
Biomarkers, Wearables, and Decentralised Trials
US Care Providers Increasingly Comfortable with D2C Genetic Tests
---
Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host Kimberly on LinkedIn at @kattague.
Welcome to this bonus episode of Rare and Relevant TL;DR!
Our regular episode this week, the week of the 24th of May 2023 features a chat with Dr. Nicola Garnier of Screen4Care. Go check that episode out to hear our discussion about new-born screening.
Now, whether this is your first or fifth episode, thanks for being here! It means a lot to me and the folks whose news, events, and guest appearances are featured in this podcast. If you’d like to share something with us or share a voice message, check the show notes for details on how to make contact.
Below are links to the information mentioned in this episode.
For folks who would like to check out Kimberly's Social Health Awards profile page, you can do so here:
https://www.wegohealth.com/KimberlyT11.
---
Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host Kimberly on LinkedIn at @kattague.
The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages.
We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.