Connecting ALS

Welcome to Connecting ALS. This week, Mike and Jeremy are joined by Katie Berge, director of federal affairs at The Leukemia & Lymphoma Society. Katie walks us through the first 100 days of the Biden administration and lays out the health care fights ahead.

Show Notes

This week, Mike and Jeremy are joined by Katie Berge, director of federal affairs at The Leukemia & Lymphoma Society and a member of the Partnership to Protect Coverage, a group of 33 patient advocacy organizations including The ALS Association. Katie walks us through the first 100 days of the Biden administration and lays out the health care fights ahead.

For more information about the partnership and its 100 days agenda, go to https://www.lls.org/news/33-organizations-representing-millions-of-patients-urge-policymakers-to-adopt-patient-first-policy-agenda?news=News%20Releases&newsid=12355

Learn more about The ALS Association’s call for a boost in federal funding of ALS research here https://www.als.org/blog/boost-funding-needed-als-research-year

Stay up to date with The ALS Association’s advocacy priorities at https://www.als.org/advocacy/our-priorities

Sign up to become an advocate at https://als.quorum.us/register/

This episode was produced by Garrett Tiedemann and is brought to you by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. 

What is Connecting ALS?

Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.