Connecting ALS

Welcome to Connecting ALS. Today we revisit testimonies provided by advocates to consider ICER’s flawed analysis of AMX0035.

Show Notes

This week Jeremy revisits testimony provided by ALS advocates and ALS Association leaders at a recent public forum to consider ICER’s flawed analysis of AMX0035 and oral edaravone.
 
Watch the public forum in its entirety at https://www.youtube.com/watch?v=iqmXcxgkMPY&t=13s
 
Learn more about the fight for access to therapies at als.org/icer
 
Learn more about Steve Kowalski at https://www.als.org/blog/theres-still-lot-life-be-lived-steve-kowalskis-story
 
Read some of Sunny’s story at https://www.als.org/blog/sunny-brous-erasmus-long-were-here-were-together
 
Follow Sunny’s journey at https://sunnystrong.com/

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

What is Connecting ALS?

Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.