Connecting ALS

Welcome to Connecting ALS. This week, Jeremy is joined by guest co-host Ken Paves to dig into some of the challenges of being a caregiver and Nancy LeaMond from AARP to talk about some of the ongoing public policy fights that will provide additional support for family caregivers.

Show Notes

This week, Jeremy is joined by guest co-host Ken Paves, a celebrity hair stylist and entrepreneur who is the primary caregiver for his mother to dig into some of the challenges of being a caregiver. Later, Jeremy talks to Nancy LeaMond from AARP about some of the ongoing public policy fights that will provide additional support for family caregivers.

Learn more about caregiver needs at https://www.als.org/research/als-focus/survey-results/survey-3-results

Sign up to participate in the current ALS Focus survey at https://www.neuroserver.org/als-focus/Home/login

Find resources for caregivers at https://www.als.org/navigating-als/for-caregivers

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

What is Connecting ALS?

Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.