Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Key points discussed: 

**Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.

**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.

**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.

**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.

**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.

**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.

**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.

**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.

**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.

Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.

Chapters

00:00 Introduction and Overview
01:14 Americans with Disabilities Act
03:28 Reasonable Accommodations in the Workplace
04:38 Determining Reasonable Accommodations
09:07 Accommodations in High School and College
11:22 Challenges with Disability Services in Education
13:59 Advocating for Accommodations in Education
16:36 Disclosing Disabilities to Employers and Universities
19:03 Determining Job Compatibility with Accommodations
21:03 Getting a Service Dog
23:37 Regulations and Considerations for Service Dog Training
36:33 Dealing with Unresponsive Disability Lawyers
38:07 Appealing Denied Disability Benefits
40:03 Legal Recourse for Undertreatment of Pain
43:07 Accommodations for Productivity Standards
43:45 Correcting Inaccuracies in Medical Records
47:46 Knowing When to Get an Accommodation or Apply for Disability
48:36 Considerations for Applying for Disability
50:23 Assets and Poverty Threshold for Disability
58:58 Making Disaster and Emergency Response Accessible
01:02:44 Hypermobility Hack: Walking Desk

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
 
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

For disability rights in general: https://www.ada.gov and https://adata.org/
For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/
For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability
https://choosework.ssa.gov/

#BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges 


Creators & Guests

Host
Hypermobility MD: Dr Linda Bluestein
🩺 Pain & inflammation specialist 🦓 EDS, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 📲More on IG. 🚫Not medical advice.

What is Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein?

Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone with symptomatic joint hypermobility (EDS, HSD, Marfan's). Learn to optimize your hypermobile health!