Progress Over Decades: We’ve Come a Long Way

Kyle Smith, an individual living with sickle cell disease, shares his story. Dr. Wally Smith interviews Dr. Clarice Reid on the history of sickle cell disease, Dr. Marilyn Hughes Gaston on surprises she experienced when starting her career in sickle cell advocacy, Dr. Russell Ware on present day care, Dr. Betty Pace on research that correlates genomics with clinical outcomes, and Dr. Titilope Fasipe, a clinician who lives with sickle cell disease.

Show Notes

In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. Wally Smith interviews a legend in the field Dr. Clarice Reid on the history of sickle cell disease. She describes two events that helped launch sickle cell disease into public awareness. Dr. Marilyn Hughes Gaston shares surprises she experienced when starting her career in sickle cell advocacy. For present day care, Dr. Russell Ware advocates for preventative medicine for  individuals living with sickle cell disease. Dr. Betty Pace sheds light on research that correlates genomics with clinical outcomes and hints at the possibility of using combination therapy in the future. Lastly, an individual living with sickle cell disease  and clinician Dr. Titilope Fasipe encourages listeners to join the mission of improving outcomes and equity for people living with sickle cell disease.
Learn more about ASH's Sickle Cell Disease initiative by visiting https://www.hematology.org/advocacy/sickle-cell-disease-initiative.
Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

What is Bringing Sickle Cell Disease to Life?

This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the fight for sickle cell disease survival!