"Finding Ways to Reduce Caregiver Burden and Harms…"

Welcome to Connecting ALS. This week, Jessica and Jeremy are joined by Dr. Sarah Parvanta and Michael Trainor to discuss the recent findings from the second ALS Focus survey, which focused on the needs of caregivers.

Show Notes

This week, Jessica and Jeremy are joined by Dr. Sarah Parvanta, director of ALS Focus, and Michael Trainor, a member of the ALS Focus Patient and Caregiver Advisory Committee. Dr. Parvanta and Michael discuss the recent findings from the second ALS Focus survey, which focused on the needs of caregivers.

To learn more about the ALS Focus program, go to https://www.als.org/research/als-focus

Sign up to participate in ALS Focus at https://www.als.org/research/als-focus/als-focus-registration-instructions

Check out the results of earlier ALS Focus surveys at https://www.als.org/research/als-focus/survey-results

Find resources for caregivers at https://www.als.org/navigating-als/for-caregivers

This episode was produced by Garrett Tiedemann and is brought to you by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. 

What is Connecting ALS?

Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.