The Genetics of Hope

The Genetics of Hope Trailer Bonus Episode 3 Season 1

Parenting a Rare Disease Child with Rare Mamas Founder Nikki McIntosh

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Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wants to empower other rare disease parents to shift from distress to prowess.

Show Notes

Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wants to empower other rare disease parents to shift from distress to prowess. In this conversation, we speak with Nikki about the path to diagnosis, family dynamics, parenting, and getting comfortable with not being comfortable. Also on the episode are Genetics of Hope co-directors Artemis Joukowky, Gareth Burghes, and Cray Novick. 

What is The Genetics of Hope?

Candid conversations with leading doctors, patients, researchers, and families in rare disease communities.