WEBVTT NOTE This file was generated by Descript 00:00:07.039 --> 00:00:10.069 Candace Dellacona: Welcome everyone to the Sandwich Generation Survival Guide. 00:00:10.069 --> 00:00:12.059 I am your host, Candace Dellacona. 00:00:12.499 --> 00:00:18.349 I am so happy today to welcome my colleagues, my trusted referral sources 00:00:18.349 --> 00:00:23.069 in the world of home care, Joyce Barocas and Albert Eshoo, who are owners of 00:00:23.069 --> 00:00:27.809 Right at Home Home Care here in New York City, where we are broadcasting from. 00:00:28.319 --> 00:00:33.949 I am welcoming Joyce and Albert because they are my go-tos in terms 00:00:33.949 --> 00:00:40.249 of long-term care, particularly when my clients and the people that 00:00:40.249 --> 00:00:41.989 I know are looking for home care. 00:00:42.299 --> 00:00:45.599 They have so much knowledge and they are kind enough to join me today 00:00:45.599 --> 00:00:46.859 to share that knowledge with us. 00:00:46.859 --> 00:00:47.379 So welcome guys. 00:00:48.609 --> 00:00:49.509 Albert Eshoo: Thank you very much. 00:00:49.509 --> 00:00:50.589 We're really glad to be here. 00:00:51.474 --> 00:00:52.614 Candace Dellacona: So happy to have you. 00:00:53.364 --> 00:00:59.424 So why don't we start before we get into home care and how people access 00:00:59.424 --> 00:01:02.504 it and really the sort of highlight of what we're talking about today, 00:01:02.504 --> 00:01:09.629 which is this really incredible new pilot program, beyond the pilot stage. 00:01:09.909 --> 00:01:15.339 But this new program that has been created by Medicare called the 00:01:15.339 --> 00:01:19.539 GUIDE Program that's going to help families and caregivers and those 00:01:19.539 --> 00:01:21.099 with Alzheimer's and dementia. 00:01:21.409 --> 00:01:25.639 The two of you are my resident experts in the program, and I cannot wait for you to 00:01:25.639 --> 00:01:29.539 share with our listeners what it's about, how to access it, how it'll help us. 00:01:29.539 --> 00:01:34.594 But let's first start with how did both of you get into the home care space. 00:01:35.809 --> 00:01:37.279 Albert Eshoo: Well, why don't I start? 00:01:37.309 --> 00:01:45.049 I had a career on Wall Street for about 25 years, and when that was over we needed, 00:01:45.169 --> 00:01:48.109 a new sort of second act for ourselves. 00:01:48.619 --> 00:01:56.099 And in my case I wound up taking care of an aunt in my family and got very 00:01:56.099 --> 00:01:59.549 deeply involved in the caregiving and learned that really, you don't have 00:01:59.549 --> 00:02:03.649 to be a nurse, you really just need an extra set of hands, extra set of eyes. 00:02:04.279 --> 00:02:06.649 And that's, that was my exposure to it. 00:02:06.699 --> 00:02:08.499 Joyce, do you wanna share yours? 00:02:08.769 --> 00:02:09.249 Joyce Barocas: Sure. 00:02:09.249 --> 00:02:14.889 And I started as a brand manager in the beauty industry and, my brother was a 00:02:14.949 --> 00:02:19.269 captain in the fire department and had 9/11 related cancer, and that's where 00:02:19.269 --> 00:02:21.459 I came in as the caregiver for him. 00:02:21.849 --> 00:02:24.069 And Albert said it exactly right. 00:02:24.099 --> 00:02:27.879 You just wanna go do a run at the supermarket and not worry about 00:02:27.879 --> 00:02:29.319 the person you're caring for. 00:02:29.769 --> 00:02:33.389 And I had a whole established group of people to help me and 00:02:33.389 --> 00:02:37.799 I still felt a burden and I felt I wasn't taking care of myself. 00:02:38.124 --> 00:02:42.204 And it's very taxing to take care of someone when they have, when they're 00:02:42.204 --> 00:02:43.914 older and when you have a disease. 00:02:43.914 --> 00:02:47.094 So this was the perfect, we saw the need for this industry. 00:02:47.864 --> 00:02:51.194 Albert Eshoo: So when the opportunity presented itself with Right at Home, 00:02:51.194 --> 00:02:55.744 it really made sense because we don't have to give the hard sell to anybody. 00:02:55.744 --> 00:02:59.194 We're not giving someone something that they don't need or want. 00:02:59.584 --> 00:03:04.144 It's, we explain what the service is and either they need it or they don't. 00:03:04.384 --> 00:03:07.504 A lot of people are under the impression that, they needed to 00:03:07.504 --> 00:03:11.164 get a nurse and they didn't even know a service like this exists. 00:03:11.614 --> 00:03:15.814 And we've been doing this for 12 years now, and still every once 00:03:15.814 --> 00:03:19.889 in a while, if we come across someone who had no idea that this 00:03:20.249 --> 00:03:21.729 business model is even out there. 00:03:22.619 --> 00:03:23.309 Candace Dellacona: Let's talk about that. 00:03:23.309 --> 00:03:26.894 So first of all, you know what I endeavored to do. 00:03:26.894 --> 00:03:29.954 When I started this podcast, the Sandwich Generation Survival Guide, 00:03:29.954 --> 00:03:31.964 was to provide resources to people. 00:03:32.384 --> 00:03:35.704 And the three of us have known each other for a while, and a lot of the 00:03:35.704 --> 00:03:39.754 things that we think other people know, we all have found out they don't know. 00:03:40.429 --> 00:03:41.359 Right to your point. 00:03:41.359 --> 00:03:46.219 And we all, the three of us also have a common thread, which is being personally 00:03:46.219 --> 00:03:53.209 impacted by being a caregiver and really trying to learn on the job, if you 00:03:53.209 --> 00:03:59.719 will, of the best resources, how to get those resources, access those resources. 00:03:59.769 --> 00:04:03.799 And one of the things that I really enjoy with working with the two of you 00:04:03.799 --> 00:04:06.979 is that you have all of these resources and knowledge and you have a deep 00:04:06.979 --> 00:04:08.629 understanding of the home care process. 00:04:08.629 --> 00:04:12.449 And just so that our listeners know, I think that most people don't 00:04:12.449 --> 00:04:19.679 realize is that traditional Medicare does not cover for long term care. 00:04:19.679 --> 00:04:23.259 So do you wanna talk a little bit about maybe what I'm calling 00:04:23.259 --> 00:04:26.649 the home care crisis or the caregiving crisis in America? 00:04:27.479 --> 00:04:31.379 Why this guide program is, so exciting to so many of us who 00:04:31.379 --> 00:04:33.119 are in the industry, if you will. 00:04:33.169 --> 00:04:37.399 Tell everybody a little bit about why home care comes into 00:04:37.399 --> 00:04:39.289 play and why it's so important. 00:04:39.289 --> 00:04:42.594 Because the traditional ways of paying for the care just don't fit the bill. 00:04:43.317 --> 00:04:44.637 Joyce Barocas: So that's exactly it. 00:04:44.637 --> 00:04:49.812 So when you turn 65 in America, you take your healthcare system 00:04:49.992 --> 00:04:53.022 is Medicare and what Medicare is. 00:04:53.022 --> 00:04:54.402 There are a couple of parts. 00:04:54.492 --> 00:04:56.402 Part A is your hospitalization. 00:04:56.672 --> 00:05:00.812 Part B is your health, your doctors, your wellness visits. 00:05:01.172 --> 00:05:05.622 And then there's part D, which is drugs, and Part C, which is 00:05:05.722 --> 00:05:07.792 advantage, which is like an HMO. 00:05:08.212 --> 00:05:13.432 None of these options except maybe Part C, which is Advantage help pay for home care. 00:05:13.672 --> 00:05:14.152 That's it. 00:05:14.182 --> 00:05:17.212 You have your hospitalization and you have your doctor visits. 00:05:17.392 --> 00:05:22.792 So where 90% of your work really is where you need the help is at home. 00:05:22.792 --> 00:05:24.742 You need someone to help you take a bath. 00:05:24.802 --> 00:05:28.252 You need someone to remind you to take your medication, and that's 00:05:28.252 --> 00:05:32.762 not covered by any health insurance except for a long-term care policy, 00:05:32.762 --> 00:05:37.437 which many people, it's out of reach, affordability wise for that. 00:05:37.437 --> 00:05:41.937 So that's why the home care industry where you have a home health aide or 00:05:41.937 --> 00:05:46.377 homemaker companion come in for a couple hours, as many as you need, whether 00:05:46.377 --> 00:05:50.427 it's a live-in or just a couple hours a day, just to do those things that 00:05:50.427 --> 00:05:54.747 you want your daughter to do for you or someone, a friend to do for you. 00:05:54.987 --> 00:05:58.437 But you need the reliability of having a caregiver there. 00:05:58.947 --> 00:06:01.307 So that's how we that's where the. 00:06:01.762 --> 00:06:05.782 The system is broken, and that's where home care agencies fulfill it. 00:06:06.902 --> 00:06:08.552 Candace Dellacona: Yeah, and we'll talk about that a little too. 00:06:08.552 --> 00:06:10.172 And then Albert I'll let you hop in. 00:06:10.172 --> 00:06:14.082 But what you bring up Joyce in terms of care are the activities of daily living. 00:06:14.082 --> 00:06:17.832 And the reason why Medicare doesn't pay for that is because it's not skilled 00:06:18.222 --> 00:06:20.112 and it's not for quote, unquote rehab. 00:06:20.472 --> 00:06:25.992 And so it's the tasks that we all need as we age we need assistance 00:06:25.992 --> 00:06:27.672 with in order to remain independent. 00:06:27.762 --> 00:06:32.082 And so having an agency like yours and understanding how to 00:06:32.082 --> 00:06:33.672 access that care is so important. 00:06:33.672 --> 00:06:39.472 Albert, can you fill us in a little bit about what people do when they 00:06:39.472 --> 00:06:41.512 don't have long-term care insurance? 00:06:41.542 --> 00:06:43.777 How do they then access home care? 00:06:44.802 --> 00:06:48.672 Albert Eshoo: If they don't have long-term care insurance, they can one, 00:06:48.672 --> 00:06:56.022 reach out to a private duty home care agency like us, or they can sometimes 00:06:56.022 --> 00:06:59.712 get a family member or sometimes, which 00:06:59.712 --> 00:07:00.417 Candace Dellacona: provide the care. 00:07:00.732 --> 00:07:01.692 Albert Eshoo: very taxing. 00:07:01.692 --> 00:07:07.042 And that goes right into, your thing with the sandwich generation because a lot 00:07:07.042 --> 00:07:10.402 of those people who are providing family members who are providing the home care 00:07:10.762 --> 00:07:14.242 are 57, 55-year-old women who have kids. 00:07:14.677 --> 00:07:16.447 And grandparents themselves. 00:07:16.447 --> 00:07:18.337 So there's that. 00:07:18.697 --> 00:07:21.547 Sometimes there's employee assistance programs that people 00:07:21.547 --> 00:07:25.957 can buy, like insurance or Weight Watchers or smoking cessation. 00:07:25.957 --> 00:07:29.287 They can get those programs from their HR department if they work 00:07:29.287 --> 00:07:31.807 for a company that provides that. 00:07:32.437 --> 00:07:36.467 There's also some nonprofits and disease organizations that 00:07:36.467 --> 00:07:37.817 will provide home care grants. 00:07:38.852 --> 00:07:40.052 Candace Dellacona: And those are limited though. 00:07:40.052 --> 00:07:42.932 And one of the things that we've talked about too is that the 00:07:42.932 --> 00:07:47.442 Medicaid program here in New York is supposed to pay for home care. 00:07:48.022 --> 00:07:53.292 As we know, we are in the trenches with the program that is really falling 00:07:53.292 --> 00:07:57.562 short, particularly in states that have no home care program to speak of. 00:07:57.562 --> 00:08:00.192 And unfortunately we're getting glimpses of that here in New York. 00:08:00.582 --> 00:08:04.182 And so I think a lot of clients of mine and people that I know 00:08:04.182 --> 00:08:07.062 reach out to agencies like yours to do a combination of things. 00:08:07.397 --> 00:08:11.897 Where they have a family member involved and then they bring in your agency. 00:08:11.897 --> 00:08:15.827 That is not private duty nursing, although you can get private duty nurses. 00:08:16.137 --> 00:08:21.927 You are providing those people that check in and do the activities of daily living. 00:08:22.327 --> 00:08:26.767 And, having worked with the two of you for so many years, you were kind 00:08:26.767 --> 00:08:31.357 enough to reach out to me and talk to me about this new GUIDE Program, which 00:08:31.357 --> 00:08:33.937 is really what I wanna talk about today. 00:08:34.347 --> 00:08:37.967 Joyce, do you wanna jump in and give us the broad strokes 00:08:37.967 --> 00:08:39.347 of what the GUIDE Program is? 00:08:40.392 --> 00:08:40.752 Joyce Barocas: Yes. 00:08:40.752 --> 00:08:47.052 So Medicare saw this space that wasn't being addressed in the need and 00:08:47.052 --> 00:08:51.942 GUIDE stands for guiding an improved dementia experience, and that's 00:08:51.942 --> 00:08:54.162 because dementia is on the rise. 00:08:54.162 --> 00:08:56.112 As seniors get older, it's a more common. 00:08:57.007 --> 00:09:01.777 Disease, even though it's not only related to old, you don't necessarily get it 00:09:01.777 --> 00:09:06.697 as you age, but it just happens that as you're older, you have more likely, and 00:09:06.697 --> 00:09:08.647 dementia courts a lot on the system. 00:09:08.647 --> 00:09:12.837 There's more falls, more re hospital, re readmittance. 00:09:13.017 --> 00:09:16.497 So that's just costing medicare more money. 00:09:16.527 --> 00:09:21.267 So this type of program is something that they felt could fulfill a need 00:09:21.537 --> 00:09:24.567 and help maintain a consistent care. 00:09:24.777 --> 00:09:28.707 So therefore, there's the client who has dementia, gets better 00:09:30.202 --> 00:09:32.422 services, get better care. 00:09:32.812 --> 00:09:36.832 Their caregiver, their non-paid family member or just the non-paid 00:09:36.832 --> 00:09:39.382 caregiver gets better support. 00:09:39.622 --> 00:09:41.422 Their burden is taken off of them. 00:09:41.422 --> 00:09:43.912 They have a place to go to ask questions. 00:09:44.332 --> 00:09:48.112 And then it keeps the dementia client in their house longer, which is 00:09:48.112 --> 00:09:51.712 where most people who wanna age in their home, and it's safer that way. 00:09:51.922 --> 00:09:56.047 So those are the three key things that I think this program really helps address. 00:09:57.727 --> 00:10:00.697 Candace Dellacona: I love the fact that it was born out of the need. 00:10:00.707 --> 00:10:03.827 And I think what's unique about this program, what you've shared with me, 00:10:03.827 --> 00:10:06.227 was that it was really a joint effort. 00:10:06.637 --> 00:10:09.427 And I think the origin was through the national plan to 00:10:09.427 --> 00:10:10.892 address Alzheimer's disease. 00:10:10.997 --> 00:10:15.837 And, in a time of such political disconnect, there were bipartisan 00:10:15.837 --> 00:10:18.957 efforts to try to get this program. 00:10:19.632 --> 00:10:21.012 Off the ground. 00:10:21.372 --> 00:10:26.082 Albert, do you know much about the national plan to address Alzheimer's 00:10:26.082 --> 00:10:30.792 disease and why it's different in the guide program with respect to 00:10:30.792 --> 00:10:32.622 caregivers and not just the patient. 00:10:32.997 --> 00:10:36.747 Albert Eshoo: I'm aware of this plan, but I don't know the details of it. 00:10:36.747 --> 00:10:39.057 I mean, I know that it's a national plan. 00:10:39.057 --> 00:10:43.137 They could create it an advisory council, and they're trying to 00:10:43.187 --> 00:10:45.737 foster inter-agency coordination. 00:10:46.377 --> 00:10:49.617 I can see how the GUIDE program would've grown out of that because 00:10:49.617 --> 00:10:52.077 that what it is intended to doing. 00:10:52.777 --> 00:10:55.907 Candace Dellacona: I think one of the things that I understand is 00:10:55.907 --> 00:11:01.607 that, there are close to a hundred million aging people in this country. 00:11:01.607 --> 00:11:05.177 There's something called the gray or the aging wave. 00:11:05.227 --> 00:11:06.407 Albert Eshoo: The silver tsunami. 00:11:06.872 --> 00:11:07.952 Candace Dellacona: It's the tsunami. 00:11:07.952 --> 00:11:09.272 Thank you for that, Albert. 00:11:09.272 --> 00:11:11.102 So that's even more foreboding. 00:11:11.102 --> 00:11:14.852 It sounds really scary when you put it in those terms instead of a wave a 00:11:14.852 --> 00:11:19.232 tsunami, but I think that that's accurate because joyce, when you bring up the 00:11:19.232 --> 00:11:24.362 fact that this program was created because there's this awareness that the 00:11:24.362 --> 00:11:28.682 falls and all the things that lead up to it are costing our country money. 00:11:29.042 --> 00:11:33.392 The study that was done through the NAPA was basically to show that, 00:11:33.392 --> 00:11:38.237 look, we are in big trouble unless we address the aging crisis and 00:11:38.237 --> 00:11:39.977 the caregiving crisis in America. 00:11:40.337 --> 00:11:42.557 'cause there is this ripple effect, right? 00:11:42.557 --> 00:11:45.887 You have the sick person and then you have the family around them and 00:11:45.887 --> 00:11:50.087 everyone's throwing in their ropes to help the person who is sick. 00:11:50.087 --> 00:11:52.247 And if you have a memory impairment, you can't grab the rope. 00:11:52.667 --> 00:11:57.917 So you have all of these people around you really not able to accept the care. 00:11:57.917 --> 00:12:00.587 And then you have the caregivers who in many ways are 00:12:00.587 --> 00:12:02.267 sacrificing their own careers. 00:12:02.687 --> 00:12:04.817 Their own economic safety. 00:12:05.087 --> 00:12:08.527 They're dealing with trying to raise kids and maybe even throwing the 00:12:08.617 --> 00:12:12.127 a hand to raise their grandkids in some ways or pick them up for school. 00:12:12.127 --> 00:12:13.897 And they're also dealing with aging parents. 00:12:13.897 --> 00:12:18.167 So it seems to me that the GUIDE program it has been born out of 00:12:18.947 --> 00:12:22.627 pure necessity, which is, as they say, it's the mother of invention. 00:12:22.687 --> 00:12:26.787 And so what I love about the GUIDE program though, and maybe Albert, 00:12:26.787 --> 00:12:28.527 you can talk to this a bit about. 00:12:29.052 --> 00:12:32.022 How the caregiver is also part of the program. 00:12:32.022 --> 00:12:35.202 So do you wanna talk about the first step? 00:12:35.202 --> 00:12:43.217 So let's say I have a, a parent who has dementia and I'm the sole caregiver. 00:12:43.907 --> 00:12:46.577 Albert, what are the steps that I would go through? 00:12:46.577 --> 00:12:50.477 I'm gonna call you 'cause you're a home care agency and say, Hey, I heard 00:12:50.477 --> 00:12:51.737 about this program, what do I do? 00:12:52.752 --> 00:12:56.352 Albert Eshoo: The first thing we wanna do is we wanna make sure that people 00:12:56.352 --> 00:12:58.772 are qualified to be in the program, 00:12:59.067 --> 00:12:59.357 Candace Dellacona: Okay. 00:12:59.792 --> 00:13:00.062 Albert Eshoo: right? 00:13:00.062 --> 00:13:06.002 So in order to be in the program, you have to have original Medicare parts A and B. 00:13:06.857 --> 00:13:07.277 Candace Dellacona: Okay. 00:13:07.697 --> 00:13:10.247 Albert Eshoo: You need to have a dementia diagnosis. 00:13:10.817 --> 00:13:16.167 And if you don't have a dementia diagnosis you can get one through a plan 00:13:16.167 --> 00:13:21.037 participant in our case the participant is pocket RN and where their partner 00:13:21.277 --> 00:13:25.807 so they can actually do a diagnosis and get the ball rolling with that. 00:13:26.737 --> 00:13:28.957 Candace Dellacona: So, just to interrupt you, Albert, I think it's important to 00:13:28.957 --> 00:13:32.057 know, if people are listening and saying like, how do you not have a diagnosis? 00:13:32.057 --> 00:13:33.617 It happens all the time, guys. 00:13:33.947 --> 00:13:38.237 What that means is we're helping our mom or our dad, or our aunt or our uncle 00:13:38.237 --> 00:13:39.737 in our case, or your brother Joyce. 00:13:40.157 --> 00:13:44.037 And that they have memory impairment, but there's not yet a formal diagnosis. 00:13:44.037 --> 00:13:46.707 So that formal diagnosis, everyone is really important. 00:13:46.707 --> 00:13:50.367 Albert and Joyce can connect you with a partner that will 00:13:50.367 --> 00:13:54.497 provide the diagnosis, but that is absolutely one of the first steps. 00:13:55.752 --> 00:13:56.382 Albert Eshoo: Exactly. 00:13:56.892 --> 00:13:59.812 And there's no there's no cost to any of this. 00:13:59.812 --> 00:14:01.522 There's no copays or anything like that. 00:14:01.522 --> 00:14:02.572 It's completely free. 00:14:03.022 --> 00:14:05.912 There are some disqualifying factors though. 00:14:06.212 --> 00:14:11.972 For instance, if you are on a Medicare Advantage program, that's disqualifying. 00:14:12.422 --> 00:14:15.662 If you're on hospice, that's disqualifying. 00:14:15.872 --> 00:14:19.592 And if you're in a long-term care facility like a nursing 00:14:19.592 --> 00:14:21.962 home who's also disqualifying. 00:14:22.932 --> 00:14:24.522 Those will be the first steps. 00:14:24.652 --> 00:14:29.697 After they get in touch with our partner, there's then a welcome call that is 00:14:29.697 --> 00:14:34.437 scheduled and they will go through the details of the GUIDE program with them, 00:14:35.157 --> 00:14:41.457 so that way they'll verify their original Medicare parts A and B, and they'll 00:14:41.507 --> 00:14:44.007 explain what all the next steps are. 00:14:44.517 --> 00:14:47.597 They will then provide an assessment. 00:14:48.362 --> 00:14:51.602 If they don't have an official diagnosis and they can arrange 00:14:51.602 --> 00:14:58.682 that and then care, they would be assigned a navigator for life 00:14:59.172 --> 00:15:01.652 Candace Dellacona: So you go through the assessment process. 00:15:01.982 --> 00:15:05.732 You have your diagnosis, you have the right type of Medicare. 00:15:05.972 --> 00:15:09.632 You're not in a nursing home, you're not receiving palliative care or hospice. 00:15:10.052 --> 00:15:14.402 You make the call, you get enrolled, which again, Albert said it's free, guys. 00:15:14.402 --> 00:15:16.742 This is something that is absolutely free. 00:15:17.332 --> 00:15:20.932 You are then assigned a care navigator, is that right? 00:15:21.102 --> 00:15:21.812 Albert Eshoo: That's correct. 00:15:22.392 --> 00:15:24.852 Candace Dellacona: So tell us about the program. 00:15:24.852 --> 00:15:29.052 What does the program actually do for people and families? 00:15:29.472 --> 00:15:32.242 Albert Eshoo: So there are a bunch of wraparound services. 00:15:32.242 --> 00:15:36.492 There are like eight domains, and I'll talk about the first four and 00:15:36.672 --> 00:15:38.172 Joyce will talk about the next ones. 00:15:38.632 --> 00:15:42.562 So the first the first thing that is provided is a comprehensive assessment. 00:15:43.192 --> 00:15:49.132 They will by the phone and internet assess the care recipient. 00:15:50.032 --> 00:15:55.282 Come up with a plan for them and they will also assess the family and the caregiver 00:15:55.282 --> 00:15:57.472 and see where they can best get help. 00:15:57.862 --> 00:16:02.182 So then a care plan will be provided for them that they can follow up 00:16:02.182 --> 00:16:05.302 with on a periodic basis to make sure the plan is being followed. 00:16:06.337 --> 00:16:08.647 Candace Dellacona: So Albert, what is a care plan? 00:16:08.827 --> 00:16:09.877 What does that mean? 00:16:10.777 --> 00:16:16.237 Albert Eshoo: Well, it could be anything from providing a schedule for social 00:16:16.237 --> 00:16:23.417 interaction, for getting to doctor's appointments who is going to provide 00:16:23.417 --> 00:16:28.246 home care for them, if they need home care because all of these services 00:16:28.296 --> 00:16:30.386 are in addition to home care, right? 00:16:30.606 --> 00:16:33.306 The GUIDE program is coming into your home virtually. 00:16:33.546 --> 00:16:39.006 So you have access to a navigator, access to a nurse who's been trained in dementia. 00:16:39.426 --> 00:16:44.926 There's other parts of it in terms of, do they have any other situations 00:16:44.926 --> 00:16:47.796 or comorbidities or some, other. 00:16:48.721 --> 00:16:51.171 Ailment that is also impacting their dimentia. 00:16:52.291 --> 00:16:55.231 And then you have access to that person 24 7. 00:16:55.681 --> 00:16:59.971 So if you need help you've hit a roadblock, you don't know what to do. 00:17:00.181 --> 00:17:01.381 You have someone to call 00:17:01.801 --> 00:17:06.901 24 hours a day, which is, not something that ever happened before. 00:17:06.901 --> 00:17:10.401 Even the wealthiest people couldn't get in touch with somebody, like that. 00:17:11.526 --> 00:17:13.986 Then there's ongoing monitoring and support. 00:17:14.256 --> 00:17:18.256 So regularly scheduled calls with the navigator or regularly 00:17:18.256 --> 00:17:19.936 scheduled calls with the nurse. 00:17:20.366 --> 00:17:25.746 They can suggest home modifications, they can suggest, dietary changes. 00:17:26.016 --> 00:17:30.056 They can suggest what sort of home care the person's going to need, what 00:17:30.266 --> 00:17:31.896 that person is gonna do with them. 00:17:32.616 --> 00:17:35.166 Joyce Barocas: So the navigator or the care coordinator. 00:17:35.376 --> 00:17:37.656 They work with the community as well. 00:17:37.656 --> 00:17:42.996 So what community resources are available to help you, to help the caregiver 00:17:42.996 --> 00:17:44.946 and to help the person with dementia? 00:17:45.216 --> 00:17:49.926 So maybe it's Meals on Wheels in New York, or maybe it's a company that could do 00:17:49.926 --> 00:17:54.436 a modification in the bathroom to help, with showering when they're in the shower. 00:17:54.671 --> 00:17:57.911 So she can coordinate that as well. 00:17:58.151 --> 00:18:00.551 The other thing she coordinates is healthcare. 00:18:00.551 --> 00:18:05.261 So if there needs to be another doctor's appointment, maybe she'll coordinate 00:18:05.261 --> 00:18:07.331 getting the transportation there and back. 00:18:07.701 --> 00:18:09.711 A schedule of the doctor's appointments. 00:18:09.921 --> 00:18:14.081 And a lot of times, dementia or Alzheimer's isn't your only sickness 00:18:14.081 --> 00:18:19.781 at this age, you might have other morbidities such as diabetes or other 00:18:19.781 --> 00:18:24.191 things like that, and they can oversee the coordination of that which comes 00:18:24.191 --> 00:18:25.961 into your medication management. 00:18:25.961 --> 00:18:28.301 And that's another thing the care coordinator does. 00:18:28.511 --> 00:18:33.491 She makes sure your medications, your, you understand that the caregiver understands, 00:18:33.651 --> 00:18:38.951 what needs to be done when, what can't be, overlapped, what the side effects. 00:18:38.961 --> 00:18:41.301 Could be of those medications. 00:18:41.481 --> 00:18:45.801 So the caregiver is aware and knows, oh, he's falling asleep too early. 00:18:45.801 --> 00:18:49.671 Well, maybe we could adjust that and she could work with you to talk to the doctor. 00:18:50.121 --> 00:18:54.261 And lastly, there's the caregiver support, which is education. 00:18:54.261 --> 00:18:58.461 They could provide classes that the caregiver can take just to learn. 00:18:58.811 --> 00:19:03.726 Why does my father keep on talking about something that happened 20 years 00:19:03.726 --> 00:19:05.676 ago, like, why does he remember that? 00:19:05.916 --> 00:19:07.746 So it's just stuff to help you. 00:19:07.866 --> 00:19:12.636 And in addition to that, people with moderate to severe dementia are able 00:19:12.636 --> 00:19:15.596 to get 72 hours of respite care. 00:19:15.806 --> 00:19:20.396 So that's where our agency would come in, in addition to help with the respite care. 00:19:20.936 --> 00:19:24.326 Those, the care navigator is just, it's like having a big brother 00:19:24.326 --> 00:19:28.176 there that you could ask questions to when you just need that help. 00:19:28.476 --> 00:19:32.906 And it's really someone who knows what the symptoms are of dementia 00:19:33.176 --> 00:19:37.636 and knows what, when you need to step out and get another level of support. 00:19:38.436 --> 00:19:39.846 Albert Eshoo: It's a free care manager. 00:19:40.146 --> 00:19:43.596 Candace Dellacona: Yeah, I was just gonna say, it's really what it is. 00:19:43.656 --> 00:19:48.906 The title of the program is pretty accurate, that it's your guide. 00:19:48.956 --> 00:19:52.976 I think no matter what I'm in this industry, you are in this 00:19:52.976 --> 00:19:56.486 industry, it still feels like we're operating in the blind. 00:19:56.966 --> 00:19:58.466 Every person is unique. 00:19:58.526 --> 00:20:02.936 Everybody has a unique set of circumstances, health and otherwise. 00:20:03.692 --> 00:20:05.342 And unique personalities. 00:20:05.342 --> 00:20:08.852 We'll mention that too because that can certainly factor 00:20:08.852 --> 00:20:11.492 into who is providing care. 00:20:11.912 --> 00:20:17.462 And so having this care manager, this navigator that really can 00:20:17.462 --> 00:20:22.962 serve as, your guide in the darkest of times is really remarkable. 00:20:22.962 --> 00:20:26.982 Going back to what you said, Albert, and the plan of care, I think 00:20:27.012 --> 00:20:30.192 that's one thing that many families. 00:20:31.017 --> 00:20:31.887 Skip over. 00:20:32.607 --> 00:20:36.597 And what I mean by that is that in the beginning it seems to be all hands 00:20:36.597 --> 00:20:39.387 on deck and there's a lot of chaos. 00:20:39.832 --> 00:20:40.402 Albert Eshoo: Flailing. 00:20:40.737 --> 00:20:41.457 Candace Dellacona: Flailing. 00:20:41.517 --> 00:20:42.267 Exactly. 00:20:42.267 --> 00:20:47.227 There's a lot of flailing and oftentimes it's well intended, and everyone's 00:20:47.227 --> 00:20:53.204 trying to do the best that they can, but when it wears off, you're left 00:20:53.204 --> 00:20:58.604 with saying, okay, there's this one person who's probably doing 80% of it. 00:20:58.604 --> 00:21:04.184 So setting up a plan of care for families is so important, don't you think? 00:21:04.394 --> 00:21:05.084 Albert Eshoo: Absolutely. 00:21:05.084 --> 00:21:09.204 It's, a good metaphor would be like a rowboat everyone's playing on the, oar 00:21:09.224 --> 00:21:14.524 at the same time, in the same direction, rather than a scattershot sort of plan. 00:21:14.824 --> 00:21:15.274 Candace Dellacona: Yeah. 00:21:15.274 --> 00:21:22.059 And having an expert assist you in setting up that plan to say you 00:21:22.059 --> 00:21:23.979 don't need four hours a day of care. 00:21:23.979 --> 00:21:25.599 You need eight hours a day of care. 00:21:25.599 --> 00:21:29.439 You have an expert saying, no, this is untenable, because, 00:21:29.439 --> 00:21:30.969 it'll feel untenable to us. 00:21:30.969 --> 00:21:34.579 But I think a lot of times, and I don't know if you said this Albert, or you said 00:21:34.579 --> 00:21:39.289 a Joyce, but a lot of times the burden falls on women and Albert, you're a great 00:21:39.289 --> 00:21:44.834 nephew for helping your aunt, but a lot of it falls on us as women, and I think 00:21:45.014 --> 00:21:47.684 we have a tendency to try to do it all. 00:21:49.154 --> 00:21:53.054 And so it's great to have a care navigator coming in and saying 00:21:53.054 --> 00:21:54.614 to us, Joyce, okay, no, no, no. 00:21:54.614 --> 00:21:55.994 You can't do it all, right. 00:21:57.314 --> 00:21:58.814 Joyce Barocas: No, you're exactly right. 00:21:58.814 --> 00:22:02.424 And especially if you're working, that's important to you. 00:22:02.424 --> 00:22:04.014 You have to have your own health, 00:22:04.344 --> 00:22:04.734 Candace Dellacona: yeah. 00:22:05.169 --> 00:22:06.399 It's so important. 00:22:06.649 --> 00:22:11.129 The one thing too that I wanna mention in terms of caregiving is that, even if 00:22:11.129 --> 00:22:15.569 you do have a willing daughter-in-law or a very good friend to help you with 00:22:15.569 --> 00:22:20.399 those activities of daily living, I think it's important to point out that although 00:22:20.459 --> 00:22:22.319 home care attendants are not nurses. 00:22:23.174 --> 00:22:25.394 They do have training. 00:22:25.814 --> 00:22:31.004 So can you talk a little bit about the type of training that home care attendants 00:22:31.064 --> 00:22:36.714 have so that when you when, let's say the Care Navigator says, okay, we are putting 00:22:36.714 --> 00:22:40.224 this plan in place and we're gonna connect you with Right at Home here in New York. 00:22:41.079 --> 00:22:46.209 They're going to send trusted people in to help you take care of your mom. 00:22:46.209 --> 00:22:50.169 What sort of instruction and training do your people and home 00:22:50.169 --> 00:22:51.789 care attendants get in general? 00:22:51.969 --> 00:22:54.639 To provide the care of activities of daily living. 00:22:55.414 --> 00:22:58.984 Albert Eshoo: One of the things that we do and have done in the past is 00:22:59.204 --> 00:23:01.154 they would get a virtual dementia tour. 00:23:01.604 --> 00:23:04.824 So they would have equipment that they would wear that would simulate 00:23:04.824 --> 00:23:06.264 what it's like to have dementia. 00:23:06.744 --> 00:23:12.804 But then we would give them tasks to do and inevitably they would fail or struggle 00:23:12.804 --> 00:23:17.794 with those tasks, simple tasks, and so that gave them a little bit of empathy 00:23:17.794 --> 00:23:20.264 for people who suffer from dementia. 00:23:20.624 --> 00:23:26.399 In addition to that, things that HHA do like bathing and dressing and feeding. 00:23:26.669 --> 00:23:34.049 You can't perform those ADLs the same way with a person who has all their 00:23:34.049 --> 00:23:39.089 cognitive abilities versus someone who has diminished cognitive ability 00:23:39.629 --> 00:23:41.219 just from the way you approach them. 00:23:41.219 --> 00:23:43.139 You wanna approach them straight on. 00:23:43.379 --> 00:23:44.729 You don't wanna come up behind them. 00:23:45.119 --> 00:23:46.499 You don't wanna surprise them. 00:23:46.829 --> 00:23:51.269 Bathing them is gonna be, sometimes it's a mind sort of experience. 00:23:51.539 --> 00:23:55.829 'cause you can't just explain them or give them instructions, it's not gonna fly. 00:23:56.339 --> 00:24:00.529 That would be a huge benefit to having, caregivers who are trained 00:24:00.559 --> 00:24:04.207 in dementia care to do the same thing that they would do for 00:24:04.207 --> 00:24:05.707 somebody who did not have dementia. 00:24:05.962 --> 00:24:06.502 Candace Dellacona: Yeah. 00:24:06.562 --> 00:24:06.892 Yeah. 00:24:06.892 --> 00:24:08.182 And let's talk about that too. 00:24:08.232 --> 00:24:13.122 So Joyce, I think what is most common or what I see is that there is a 00:24:13.122 --> 00:24:18.972 realization among family members when something happens and they 00:24:18.972 --> 00:24:20.982 say, oh, we are over our heads. 00:24:21.012 --> 00:24:22.782 We need to bring in a professional. 00:24:22.782 --> 00:24:25.612 And usually what precipitates is a fall. 00:24:26.212 --> 00:24:28.522 So in your experience. 00:24:28.746 --> 00:24:34.146 Bringing in a professional, what are the things, let's say, that family members as 00:24:34.146 --> 00:24:40.706 a stop gap can do to prevent things like a fall and help mobilize and transport, 00:24:40.706 --> 00:24:45.236 if you will a person with dementia and guide them throughout their home. 00:24:45.692 --> 00:24:49.252 Joyce Barocas: I think it's important to you have to work together, first 00:24:49.252 --> 00:24:53.062 of all, and everybody should have a part, and you have to decide, am 00:24:53.062 --> 00:24:55.372 I in charge of the living space? 00:24:55.372 --> 00:24:59.182 You don't want a messy living space, hoarding could be something that's 00:24:59.182 --> 00:25:01.492 very, it takes up a lot of space. 00:25:01.792 --> 00:25:03.082 It's a fall risk. 00:25:03.182 --> 00:25:05.522 It's very common in our small apartments. 00:25:05.812 --> 00:25:10.497 People shop online now and they buy a lot of stuff they collect 00:25:10.497 --> 00:25:11.607 and amass a lot of stuff. 00:25:11.787 --> 00:25:12.657 So that's one thing. 00:25:12.657 --> 00:25:14.277 Someone could be in charge of that. 00:25:14.277 --> 00:25:16.917 Making sure the living space is always neat. 00:25:17.157 --> 00:25:19.737 There's no throw rugs, so you're not tripping. 00:25:19.737 --> 00:25:23.677 Even if they're using a rollator, that can get caught and that can do it. 00:25:23.917 --> 00:25:27.957 The lighting in the area, so there's the environment that they live in. 00:25:27.957 --> 00:25:29.367 You wanna make sure that that's. 00:25:30.222 --> 00:25:32.052 Correct for them, right? 00:25:32.172 --> 00:25:36.072 The noise, any distractions could be super sensitive for them, 00:25:36.282 --> 00:25:37.692 so you wanna make sure of that. 00:25:37.902 --> 00:25:41.342 The other thing is then you could have someone who coordinates the schedule 00:25:41.342 --> 00:25:44.762 of who's gonna be taking care of them, who's gonna, making sure the meals 00:25:44.762 --> 00:25:49.242 are getting here, whether it's, a delivery service or whether a caregiver 00:25:49.242 --> 00:25:51.102 will be cooking and preparing meals. 00:25:51.332 --> 00:25:55.052 Whether someone in the family is gonna be making the meals and dropping them off. 00:25:55.322 --> 00:25:56.792 So you have to have things like that. 00:25:57.002 --> 00:26:01.662 The other thing is I think you, the HHA is that we use, which is 00:26:01.662 --> 00:26:03.192 considered a home health aide. 00:26:03.552 --> 00:26:08.112 So they're trained, they take a certificate class by New York State. 00:26:08.637 --> 00:26:13.887 And they have to keep their credits, 12 credits a year of updated training. 00:26:13.887 --> 00:26:18.367 So they know how to transfer a person who might be, we might just pull 00:26:18.367 --> 00:26:22.177 them out of bed, but they know the correct body mechanics to do that. 00:26:22.357 --> 00:26:23.887 They know what to look for. 00:26:24.147 --> 00:26:27.597 The person hasn't eaten or their medication hasn't been taken. 00:26:27.777 --> 00:26:30.177 They could see that the pills are still in the box. 00:26:30.417 --> 00:26:34.342 So those type of things are what an outside person could help 00:26:34.342 --> 00:26:37.072 with a trained home health aid. 00:26:37.472 --> 00:26:40.362 Candace Dellacona: I think all of those are great tips and I think, as being 00:26:40.362 --> 00:26:44.892 a family member, being really close to the situation, it's hard to see those 00:26:44.892 --> 00:26:50.232 issues like, clutter, if that is the way a parent or a loved one has always lived. 00:26:50.622 --> 00:26:54.732 And, people become really attached to their stuff, their quote unquote 00:26:54.732 --> 00:26:57.012 stuff, particularly when they have memory impairment issues. 00:26:57.912 --> 00:27:02.782 Finding out a way to kindly figure out a a methodology to keep their space safe. 00:27:02.782 --> 00:27:06.772 But what you just said, Joyce, is so important which is the transporting 00:27:06.772 --> 00:27:09.202 and getting people in and out of bed, in and out of a chair. 00:27:09.862 --> 00:27:14.422 You have to be a trained professional when somebody has limited mobility to do that. 00:27:14.782 --> 00:27:19.207 And I think that's really important because all what we're talking about and 00:27:19.207 --> 00:27:24.307 what we're doing, and this whole movement of GUIDE is to keep people aging in place. 00:27:24.577 --> 00:27:30.187 It's a term that's way overused for sure, but if you ask anyone, I think most of us 00:27:30.187 --> 00:27:34.207 would say that we would definitely prefer to live out our lives in our own space. 00:27:34.387 --> 00:27:36.187 And I think that that's what this program does. 00:27:36.187 --> 00:27:37.807 That's what your agency does, right? 00:27:37.807 --> 00:27:41.977 To keep people as independent as possibly in their home. 00:27:41.977 --> 00:27:44.617 And the first step in getting there is safety. 00:27:45.542 --> 00:27:52.102 Can you talk a little bit about, the best way for a family to know when it's 00:27:52.102 --> 00:27:55.882 time to call in the professional, when do they call the home care agency and 00:27:55.882 --> 00:28:01.102 say, you know what, it's before the fall, Joyce and Albert, what is, what are the 00:28:01.102 --> 00:28:04.462 red flags for families that they should really be thinking about and saying, 00:28:04.462 --> 00:28:06.112 you know, this is happening in my house. 00:28:06.112 --> 00:28:07.942 I should probably call Albert and Joyce. 00:28:09.332 --> 00:28:10.382 Albert Eshoo: There's several signs. 00:28:10.412 --> 00:28:15.232 If you visit your parents not that frequently, and then you go there and 00:28:15.232 --> 00:28:21.482 you see that the house isn't as clean as it used to be, you see that maybe their 00:28:21.482 --> 00:28:23.942 personal hygiene isn't what it used to be. 00:28:25.307 --> 00:28:31.317 If you see science projects in the refrigerator if you see mail that 00:28:31.317 --> 00:28:35.697 hasn't been open for weeks, maybe the bills aren't getting paid anymore, 00:28:36.507 --> 00:28:39.357 maybe all sorts of laundry's piling up. 00:28:39.867 --> 00:28:44.597 Those are all signs that, something's not right and someone 00:28:44.597 --> 00:28:46.547 needs to intervene in some measure. 00:28:47.067 --> 00:28:51.379 There's a probably a right way to do that and a wrong way to do that. 00:28:51.379 --> 00:28:55.979 You don't want to beat your parents over the head but you want to 00:28:55.979 --> 00:28:57.479 show that you wanna help them. 00:28:57.854 --> 00:28:58.214 Candace Dellacona: Yeah. 00:28:58.529 --> 00:29:01.769 Albert Eshoo: Staying at home, like you said is preferable. 00:29:01.769 --> 00:29:06.629 But if you think about it, when we spoke about that silver tsunami earlier. 00:29:06.674 --> 00:29:10.814 If there's no other choice, if there's nowhere for them to go, there's so 00:29:10.814 --> 00:29:16.364 many of them that if you didn't have a GUIDE program or something similar, 00:29:16.964 --> 00:29:22.754 it's gonna be disastrous for society because there's just, we're not prepared 00:29:23.024 --> 00:29:24.284 to take care of all these people. 00:29:24.699 --> 00:29:27.354 Candace Dellacona: It's so true and we talk about this quite a bit. 00:29:27.354 --> 00:29:30.644 In fact, PBS has a great documentary on care giving right now. 00:29:30.644 --> 00:29:34.574 We've seen Emma Willis, Bruce Willis' wife, wrote a book about 00:29:34.634 --> 00:29:38.774 the caregiving crisis and what she's going through as a caregiver. 00:29:39.104 --> 00:29:42.764 So when you get to the point where you think your loved one, you're seeing 00:29:42.764 --> 00:29:48.194 these signs, Albert Joyce, what's the best way to tell your parent or 00:29:48.194 --> 00:29:52.064 your loved one, I think it's time that we bring in someone to help you. 00:29:52.064 --> 00:29:53.804 How do you say that in a way? 00:29:54.204 --> 00:30:00.449 Or in your experience, are there tricks that work that don't alienate 00:30:00.449 --> 00:30:04.379 our loved ones or make them feel like they're no longer independent. 00:30:04.379 --> 00:30:05.909 Do you have any advice for us? 00:30:06.994 --> 00:30:12.664 Joyce Barocas: That's a very hard challenge, and I think the best way to do 00:30:12.664 --> 00:30:16.894 it, you try to explain it, but you have to remember, they've achieved so much, right? 00:30:16.894 --> 00:30:17.824 They're your parents. 00:30:17.874 --> 00:30:18.984 They helped you grow up. 00:30:18.984 --> 00:30:22.194 They've always been in charge, they've taken care of you, but 00:30:22.194 --> 00:30:24.054 now you are the caregiver, right? 00:30:24.384 --> 00:30:28.284 You could try to be rational, but with a dementia client, that's really hard. 00:30:28.334 --> 00:30:33.374 But I think you have to explain to them that it's a burden on the family. 00:30:33.374 --> 00:30:36.704 And I wouldn't use the word burden, but you could just say, 00:30:36.704 --> 00:30:40.634 to improve your quality of life, to make me sleep better at night. 00:30:40.874 --> 00:30:43.334 I know someone seeing you during the day. 00:30:43.364 --> 00:30:46.184 'cause I can't come every day during the week. 00:30:46.214 --> 00:30:51.764 I try to appeal to their sense that you're doing it for me to make us 00:30:51.764 --> 00:30:54.494 the family feel that you are safer. 00:30:54.974 --> 00:30:57.414 And I think that has a stronger pull. 00:30:57.714 --> 00:31:01.944 There's certain things you could say you could try to point out, but this 00:31:01.944 --> 00:31:06.114 is an industry where being rational, it's a very emotional industry. 00:31:06.739 --> 00:31:10.429 Sometimes even a caregiver doesn't wanna admit that my mother might 00:31:10.429 --> 00:31:12.589 need help or something like that. 00:31:12.669 --> 00:31:13.989 I can't handle it. 00:31:13.989 --> 00:31:17.559 I have to pay someone and there's nothing wrong with it. 00:31:17.739 --> 00:31:19.849 So I think as more people talk about. 00:31:20.424 --> 00:31:25.384 It's hard being a caregiver, even if you're not being paid, it's emotionally 00:31:25.384 --> 00:31:30.194 draining, it's physically draining and it's just a hard situation. 00:31:30.194 --> 00:31:35.084 So if I could have a little bit of peace by knowing and just a little money up 00:31:35.084 --> 00:31:39.764 front spending for a caregiver who could be there a few hours, that puts me at 00:31:39.764 --> 00:31:44.704 rest, I could breathe while I know my parents are being taken care of, and 00:31:44.704 --> 00:31:48.364 then I can call them at night and have, I could be the daughter, instead of being 00:31:48.364 --> 00:31:52.354 the caregiver, I could say how my day went and talk and how their day went, 00:31:52.414 --> 00:31:54.814 rather than, did you take your medication? 00:31:55.024 --> 00:31:56.344 Did you have a bath today? 00:31:56.394 --> 00:31:58.164 That's, you don't wanna do that. 00:31:58.164 --> 00:31:59.634 And they don't want you to do that. 00:31:59.784 --> 00:32:02.874 Candace Dellacona: And it could be really hard on the relationship. 00:32:02.874 --> 00:32:07.134 And that's one of the great sort of features of the GUIDE program too, is 00:32:07.134 --> 00:32:11.844 that there is a instead of just focusing on the care being provided to the 00:32:11.844 --> 00:32:18.919 patient there's a wide angle view of the caregiver too, and I love that part with 00:32:18.919 --> 00:32:20.749 the respite and the number of hours. 00:32:20.749 --> 00:32:24.049 So let's just go into a little bit about that. 00:32:24.079 --> 00:32:29.389 So I think, Albert, you had mentioned that when you're part of the GUIDE program, if 00:32:29.389 --> 00:32:35.509 you are the caregiver, the guide program can also award a certain number of hours. 00:32:35.884 --> 00:32:36.484 Albert Eshoo: That's correct. 00:32:36.739 --> 00:32:37.069 Candace Dellacona: Okay. 00:32:37.069 --> 00:32:39.099 So can you tell me what, repeat again? 00:32:39.099 --> 00:32:40.749 The number of hours you said 70. 00:32:40.929 --> 00:32:42.799 Albert Eshoo: 72 hours a year. 00:32:43.459 --> 00:32:45.499 So that's based on a calendar year. 00:32:45.559 --> 00:32:51.579 And if that is awarded separately from the GUIDE program, so you could be in 00:32:51.579 --> 00:32:56.439 the guide program and not necessarily get the respite if you don't have a 00:32:56.439 --> 00:32:59.959 moderate to severe diagnosis of dimentia. 00:33:00.709 --> 00:33:05.349 But if you do, you get 72 hours and then the following year they would assess 00:33:05.349 --> 00:33:08.139 again and probably award another 72 hours. 00:33:09.444 --> 00:33:14.864 Which is great, because even if the family is , providing the caregiving, they could 00:33:14.864 --> 00:33:21.384 always have someone there for, holidays when they wanna travel or someone has 00:33:21.384 --> 00:33:26.054 to, whatever they can't get out of, they can get someone to come in and help for 00:33:26.054 --> 00:33:31.474 a few hours and, 72 hours isn't a lot, but if, in blocks of four or eight. 00:33:31.774 --> 00:33:34.324 If you use it judiciously, it can make a huge difference. 00:33:34.864 --> 00:33:38.114 It's, going out for a kid's birthday or meeting a friend 00:33:38.414 --> 00:33:40.524 once a month for, to get a break. 00:33:41.064 --> 00:33:44.204 Candace Dellacona: And look, it's 72 free hours, so it's something 00:33:44.204 --> 00:33:45.169 that we didn't have before. 00:33:46.559 --> 00:33:50.729 Joyce Barocas: And it's a good way to get them slowly into being used to a 00:33:50.729 --> 00:33:55.619 different person, a professional caregiver coming in and then, they could see 00:33:55.619 --> 00:33:57.989 it's, oh, they're not bossing me around. 00:33:57.989 --> 00:34:00.489 They're giving me my space and just get used to it. 00:34:01.409 --> 00:34:01.919 Candace Dellacona: Yeah. 00:34:02.159 --> 00:34:02.849 I love that. 00:34:03.009 --> 00:34:03.669 I think that. 00:34:04.009 --> 00:34:10.319 I'm hopeful that this program and all of its attributes will be more widely 00:34:10.319 --> 00:34:15.629 recognized and, we're lucky here in, in New York where the program exists and you 00:34:15.629 --> 00:34:17.879 are one of the partners in the program. 00:34:18.299 --> 00:34:22.269 And have you gotten any sense when the program will be widely 00:34:22.269 --> 00:34:23.619 available across the country? 00:34:23.619 --> 00:34:25.599 Do you have any inside information on that? 00:34:26.284 --> 00:34:29.444 Albert Eshoo: It's been in place for a year in test markets. 00:34:29.624 --> 00:34:31.364 Texas was one of them, I think. 00:34:31.394 --> 00:34:32.984 Massachusetts might have been another. 00:34:33.354 --> 00:34:36.354 It's been live in New York since July 1st. 00:34:37.194 --> 00:34:40.224 When the other markets are gonna be added, i'm sorry I don't have inside 00:34:40.224 --> 00:34:45.884 information on that, but I know that it's been widely successful and 00:34:45.884 --> 00:34:47.624 people are very, very pleased with it. 00:34:48.104 --> 00:34:51.184 I'm sure it'll be coming sooner rather than later. 00:34:52.364 --> 00:34:54.794 People should be aware though, that it is a process. 00:34:55.034 --> 00:34:56.594 It's not like flipping on a switch. 00:34:57.194 --> 00:35:02.684 It takes time to gather the information to see if they qualify, then do the welcome 00:35:02.684 --> 00:35:05.234 call, then schedule the navigators. 00:35:05.234 --> 00:35:08.324 People wanna get that started as soon as possible if they think that 00:35:08.564 --> 00:35:09.699 it's something that they could use. 00:35:10.814 --> 00:35:14.294 Candace Dellacona: Listen, it's another tool in the toolbox for the 00:35:14.294 --> 00:35:19.724 family and nothing is perfect, but I'm glad to see that there has been some 00:35:19.724 --> 00:35:24.524 recognition of the role of the caregiver and you guys have been out there. 00:35:24.524 --> 00:35:29.144 Are in the trenches, certainly helping a lot of clients that I know make sure 00:35:29.144 --> 00:35:34.714 that they can stay at home and they are not having to go into a nursing home 00:35:34.714 --> 00:35:37.984 because as you point out, Albert, there isn't gonna be enough room for everybody 00:35:38.284 --> 00:35:39.934 and nobody wants to be there anyway. 00:35:40.234 --> 00:35:40.924 Albert Eshoo: Exactly. 00:35:41.384 --> 00:35:45.554 I should also add that all of these GUIDE services are additive. 00:35:45.824 --> 00:35:49.124 So if you're getting veterans benefits, you can get GUIDE services. 00:35:49.334 --> 00:35:53.744 If you're getting union benefits, you can get GUIDE services if you're on 00:35:54.234 --> 00:35:59.304 whatever, and you're getting some sort of service, the guide is an overlay to that. 00:35:59.304 --> 00:36:01.944 So it's not gonna take anything away from anybody. 00:36:02.214 --> 00:36:03.384 It's only additive. 00:36:05.004 --> 00:36:05.934 Candace Dellacona: Fantastic. 00:36:06.184 --> 00:36:10.624 I'm gonna thank you both again for, first of all, educating me on the program. 00:36:10.934 --> 00:36:14.284 I've done a lot of research since, I got the call I think shortly 00:36:14.284 --> 00:36:17.674 after July 1st from Albert saying, do you know about this program? 00:36:17.674 --> 00:36:20.314 And trying to make sure that my clients were aware of it. 00:36:20.364 --> 00:36:24.204 Thank you for being ambassadors for long-term care, for always looking 00:36:24.204 --> 00:36:26.574 out for people here in New York City. 00:36:26.884 --> 00:36:31.024 And really for filling in our listeners on this amazing program. 00:36:31.024 --> 00:36:34.444 I'm gonna have Joyce and Albert's contact information in our show notes 00:36:34.444 --> 00:36:36.164 if anyone wants to reach out to them. 00:36:36.164 --> 00:36:38.204 But thank you so much for being here today. 00:36:38.334 --> 00:36:39.474 Albert Eshoo: Oh, thank you for having us. 00:36:39.559 --> 00:36:40.549 We really enjoyed it.