National MPS Society: Our Voices

In this episode:
  • We go over what we've learned and experienced during the first season of "Our Voices."
  • We share some behind the scenes info about the pre-interview process and meeting people we've admired in our community.
  • We are fortunate to have many community leaders and pioneers come onto the podcast that has inspired us as parents, friends, and volunteers.
  • Advocating for others is a key part of the MPS Society and the podcast has allowed us a platform to advocate, in the case of one episode, in real time like in the case Olivia where we interviewed her parents about her first-year experience has been unnecessarily challenging because the college has done little to nothing to accommodate her needs.
  • We are excited about the new season, guests, and topics we will get to talk about this year.
  • Contact us if you'd like to suggest a topic, speaker, or story for an upcoming episode.

The  National MPS Society exists to cure, support, and advocate for MPS and ML.
If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you like the podcast, we'd appreciate you telling a friend (maybe even two). 

What is National MPS Society: Our Voices?

We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys.

The National MPS Society exists to cure, support and advocate for MPS and ML.