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Kimberly explores September’s awareness days, upcoming webinars, conferences, and industry resources. She also highlights the inspiring ”Life After Diagnosis Day” on The Disorder Channel. Stay tuned for news, voicemails, and more!
In this rare and relevant episode Kimberly delves into various awareness days and months in September. We also talk about upcoming webinars and conferences, share industry resources, and highlight the inspiring "Life After Diagnosis Day" follow-up available on The Disorder Channel.
Stay tuned for voicemails from our listeners, news about Weill Cornell Medicine and New York-Presbyterian Weill Cornell Medical Center, and San Diego-based Crinetics Pharmaceuticals' promising results in the development of an oral medication for acromegaly. So much to hear in one episode!
Links ⬇️
http://dazzle4rare.net/awareness_days](http://dazzle4rare.net/awareness_days
https://www.hopeforhh.org/get-involved/](https://www.hopeforhh.org/get-involved
https://rarediseases.org/rare-diseases/usher-syndrom](https://rarediseases.org/rare-diseases/usher-syndrome
https://www.childrenshospital.org/conditions/microvillus-inclusion-disease
https://rarediseases.org/event/nfed-advocacy-day/](https://rarediseases.org/event/nfed-advocacy-day
https://globalgenes.org/event/rare-health-equity-forum/](https://globalgenes.org/event/rare-health-equity-forum
https://www.hlth.com/2023event
https://mmpharmasciences.pathfactory.com/l/integrated-perspectives
Reach Daniel De Fabio at daniel@rarediseasefilmfestival.com
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The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages.
We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.