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In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope.
In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope. She also shares International Universal Health Coverage Day brought to our community's attention by Dr. Eleonora Passeri of Rare Special Powers (IT).
1. International Universal Health Coverage Day: https://www.un.org/en/observances/universal-health-coverage-day
2. Emma's Dravet Syndrome Story:
https://www.cbsnews.com/philadelphia/news/dravet-syndrome-rare-disease-emma-watson
3. George's Lung Condition: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1403838
4. George's Christmas Celebration:
https://www.coventrytelegraph.net/news/real-life/rugby-boys-first-christmas-without-28203691
5. Poppy's Musical Tribute: https://www.thetelegraphandargus.co.uk/news/23958762.bradford-teen-re-releases-song-memory-young-relatives
6. Buy a Copy of the Song: https://beyondrecords.uk/
7. Cure 4 The Kids' Challenge:
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The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages.
We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.