EP24: Happy Pride 2023 +Your June Rare and Relevant TL;DR

Welcome to another episode of Signalise! In celebration of Pride Month 2023, this episode delves into the intersection of LGBTQ+ pride with the URCIID (undiagnosed, rare, chronically and invisibly ill, and Disability) communities. We aim to create a safe and inclusive space for open dialogue and understanding, regardless of individual beliefs or ideologies. Later in the podcast, we explore how individuals with rare diseases navigate their diverse identities, seek support within the LGBTQ+ community, and overcome unique challenges. Grab your favorite beverage and join us in celebrating the rich diversity that makes our space so special.

Show Notes

Happy Pride Month!   Hey, welcome to another episode of Signalise and happy Pride Month 2023! In today's episode, we'll be giving you the rare and relevant TL;DR and LGBTQ+ Price as it intersects with the URCIID or undiagnosed, rare, chronically and invisibly ill, and Disability communities. We acknowledge that people hold a range of beliefs and ideologies, including those shaped by religion or political affiliations. Our intention is to create a safe and inclusive space for open dialogue and understanding, regardless of these affiliations, understanding everyone has unique and diverse beliefs. We invite everyone to join us on this journey of learning, empathy, and celebration of the rich diversity that makes our space so special.   Pride Month is celebrated globally in June, honoring the LGBTQ+ community's history, milestones, and ongoing quest for equality in our global society. Later in the podcdast, we'll talk about how individuals with rare diseases navigate their diverse identities, find support within the LGBTQ+ community, and overcome unique challenges.

Join the celebration of experiences, resilience, and history but first, grab your beverage of choice and check out this episodes Rare and Relevant, your TL;DR for our global space!

 

Links Mentioned: 

• Dr. Nicholas Garnier https://www.podbean.com/eas/pb-wyvsv-1414f86
• https://www.dazzle4rare.net/add-calendar/
• Intrahepatic Cholestasis of Pregnancy (ICP) Awareness Month - https://icpcare.org/
• neonatalscreeningday.org
• https://www.worldwithoutdisease.com/
• https://globalmeet.webcasts.com/starthere.jsp?ei%3D1619066%26tp_key%3D3051ea4f62%26sti%3Dmjhemail&sa=D&source=calendar&usd=2&usg=AOvVaw28fJ5K5yn6puTyjRGp7fVh
• https://mcri.zoom.us/webinar/register/7616855842897/WN_Fwaw6T_sTOCknWCfgT89VQ
• www.gov.uk/government/news
• https://www.swissinfo.ch/eng/multimedia/swiss-research-helps-paralysed-man-walk-again-using-implants-that-read-brainwaves/48561514#:~:text=A Dutch man who was,spinal cord to activate muscles
• https://rightasrain.uwmedicine.org/well/health/early-MS-symptoms
• https://globalgenes.org/event/rare-health-equity-forum/
• https://globalgenes.org/event/rare-advocacy-summit/

 

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Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host Kimberly on LinkedIn at @kattague.

What is Signalise: a Dazzle4Rare Podcast?

The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages.

We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.