Around the Circle: Living Well with T1D

Val Luong from The Diabetes Link was diagnosed with type 1 diabetes at 23 while serving in the Peace Corps in Costa Rica. Far from her family and without peers who understood what she was experiencing, she didn’t even know community was something she might need. Years later, one Instagram message helped her find the connection she had been missing, and ultimately helped shape her work as Manager of Community and Engagement at The Diabetes Link.

Scott and Val explore community during young adulthood when life is already full of transitions. Val explains why connection doesn’t have to mean joining a formal support group or making a big commitment. It might be one person, a text message, an online space, or a casual meetup built around a shared interest.

Along the way, Val shares how The Diabetes Link helps young adults connect on college campuses, whether it’s online through Discord, at informal in-person gatherings, or in their chapter meetings. She also offers practical guidance for reaching out, participating quietly, recognizing whether a community feels welcoming and useful, and taking one small step toward connection that genuinely fits your life.

What You'll Learn
  • Why community can feel especially complicated during young adulthood
  • How Val’s experience of isolation after diagnosis led her to seek connection years later
  • Why diabetes community doesn’t have to mean a formal support group or a major commitment
  • How one person, a text message, or quiet participation online can provide meaningful support
  • What online and in-person communities can each offer young adults with T1D
  • How The Diabetes Link helps young adults connect through college programs, Discord, and informal local meetups
  • Practical, low-pressure ways to reach out and begin building a connection
  • How to recognize whether a community respects your needs, boundaries, and energy
Key Quotes
  • “All I wanted was to know one person. I didn’t even know if we were going to be friends, but I just wanted to know that someone else out there existed and might have some similar experiences as me.” – Val Luong
  • “Community doesn’t have to be something you do every Friday for the rest of your life. It could be something that you jump into when you want to and jump out of when you’re focused on different areas of your life.” – Val Luong
  • “You don’t have to figure it all out by yourself. It’s okay to ask for support, and it’s okay not to have all the answers.” – Val Luong
Resources & Links
What is Around the Circle: Living Well with T1D?
The US healthcare system makes it difficult, expensive, and often impossible for people with T1D to access the care, education, and support they need to live. Around the Circle: Living Well with T1D brings together voices from across the type 1 diabetes community to share real stories, expert insight, and practical support for living well with T1D.

Hosted by the team at Blue Circle Health, a U.S.-based program transforming type 1 care, this podcast helps people go from just surviving to truly living well with type 1 diabetes. https://bluecirclehealth.org/.

What is Around the Circle: Living Well with T1D?

The US healthcare system makes it difficult, expensive, and often impossible for people with T1D to access the care, education, and support they need to live. Around the Circle: Living Well with T1D brings together voices from across the type 1 diabetes community to share real stories, expert insight, and practical support for living well with T1D.

Hosted by the team at Blue Circle Health, a U.S.-based program transforming type 1 care, this podcast helps people go from just surviving to truly living well with type 1 diabetes.

Learn more at BlueCircleHealth.org

When I was a young adult with
diabetes, I didn't actively

avoid community around diabetes.

I just didn't even realize it was
something I might need, right?

young adulthood is already a
lot, even without diabetes, and

I can see how the idea of finding
community can feel very overwhelming.

But community doesn't have to mean
a big group or a big commitment.

Sometimes it starts with one new diabetes
friend or even a simple text message.

Today, Val Luong from The Diabetes
Link shows us how connection can

start small, fit your life, and
still make a real difference.

But before we continue, I do need to
remind you that we're not providing

any medical advice or endorsing
any specific products or brands.

We'll always encourage you to consult your
healthcare team for personalized guidance.

Val, welcome to Around the Circle.

Thanks so much for being here today.

Hi, Scott.

Thank you so much for having me.

I'm excited to be here and talk a
little bit about the Diabetes Link,

some of my journey, community, and how
it all connects and wraps up into one.

Yeah, absolutely.

we're so glad you're here.

Before we get started, can you tell
us a little bit about yourself?

What do you do at the Diabetes Link?

also tell us a little bit
about your journey with T1D.

I am the manager of community
engagement at the Diabetes Link.

I myself live with type 1,
getting close to 11 years now.

I was also diagnosed as a young
adult, so I feel really close to our

mission here at the Diabetes Link.

Let's talk a little bit
about your, journey with T1D.

You mentioned 11 years.

Tell me a little bit about
what was going on in your life.

I know a little bit of your story, right?

You were, diagnosed at 23 while serving
in the Peace Corps in Costa Rica.

That's amazing.

Yes.

Take us back there.

What was going on in your life and,
what did that diagnosis feel like?

Yeah, I had just graduated college,
and I had moved away from my family

with the plans of being gone for two
years, which, when you're a young adult,

that's a long time to go away and do
something different, be in a different

country that maybe you've never been
to, or they speak another language.

I was sent to Costa Rica to be an
English teacher at a high school,

which was really exciting, and
when I got there, I loved it.

I loved my community.

I lived in this little, tiny
rural community near the beach.

I am from California.

I surf.

So there was just so many things I
loved besides the work that I was doing.

It was great.

and as I got closer to my first year
and really starting to feel comfortable

and understanding what my role was,
connecting with the community, I

realized, I was having all these symptoms.

And again, when you're having those
early symptoms of diabetes, I kept

making excuses for it, "Oh, I'm
so thirsty 'cause it's so hot in

Costa Rica," or, "I'm feeling tired.

Oh, it's because I walk everywhere in the
heat, and I ride my bike everywhere." So I

was probably having symptoms really, when
I look back, for probably, two months.

and then my family- came to visit me and I
hadn't seen them in a year, and the first

things my mom said is, "What's going on?

you don't look well.

are you eating enough?

Like, how are things going?" And
throughout the two weeks that they

came to visit me, I feel like my
symptoms intensified to a place where

I was like, "Okay, I do need to go
to the doctors." Luckily, the Peace

Corps, in every country they work
in, they have such great medical.

So they have doctors on staff, nurses,
they work really closely with all

the big hospitals, in every country.

So I went in, and at that point
my symptoms were so bad where

I was not really feeling my
legs, my vision was blurry.

So I truly thought I got
dengue fever from a mosquito.

so I thought, "Oh man, like I
got something and I'm not sure

what it is, but it feels scary."

when I went in Sure enough, within two
days they called me and said, "Hey,

we see some alarming results," which
then, was probably the start of all

of our diagnosis, where you're just,
in the hospital, what's going on,

all this information's coming at you.

I think the layer that was really scary
was that I was so far from my family.

I was in a different country, and even
though I'm fluent in Spanish, I feel like

I was blacking out, because it was just
so much medical terminology coming at me.

And I also couldn't process that I
was getting diagnosed with type 1.

I just thought, I'm in my 20s.

Doesn't this happen to
people when they're younger?

It just wasn't making sense.

and unfortunately, the Peace Corps,
this was the first time someone

was diagnosed while in service with
type 1, especially in Costa Rica.

So they had to, they took it
some time to figure out what next

steps look like, and that looked
like sending me back to the US.

So once I got back here, I was obviously
heartbroken, and I always say I wasn't

as heartbroken that I got diabetes.

I was more sad that I had to leave
Costa Rica, because I really loved

my time there, and I loved my job.

and from there, I took that first year to
be like, let me learn as much as I can.

And because I wasn't able to finish my
service, I took, after a year, I went

back to Costa Rica, went back to visit
people that I didn't get to say bye to,

'cause I left so quickly, and I decided
to travel for six months on my own.

I wanted to figure out diabetes
while traveling, 'cause I knew it

was something that I loved to do.

And it was scary, it was hard, it was fun.

I learned a lot, and it helped me
build a lot of foundations, but

also it pushed me to come out of my
comfort zone a lot, and I truly feel

like that experience was a blessing.

So that's a little bit about
the start of my journey.

it was hectic, it was scary, and
also being a young adult, it also

felt isolating and lonely, because I
didn't know anyone else that was my

age getting diagnosed- Yeah … with
something that they would have forever.

so I really didn't know
where to go for support.

I didn't even know community was
a thing at that time in my life.

Yeah.

today we're talking about finding
T1D community that fits your life,

and, you, teased this a little bit
in your experience, and I wanna

dig into that a little bit more.

How did it feel around
that isolation, right?

did you know that community was
something you needed after diagnosis?

Did you discover its value later?

Was there maybe a particular person or
experience that changed things for you?

how did that happen?

Yeah, that's such a great question.

I definitely, I would say right at the
start it felt isolating, but like you

said, there was this, resilience and
this mindset that I was like, "I wanna

figure this out, and I'm determined
to figure it out," because I- I want

to live a life that I wanna have.

So I was really determined at
the beginning, but I will say

community definitely came later.

So in those first years of figuring
things out as much as I could, to

traveling, to then coming back and still
feeling like something is missing, I

would say after three years is really
when I was like, something's missing."

And I really had to sit with myself
and be like, "What is it? What is

missing here?" what's this piece
of the puzzle I'm not seeing?

And it was community.

I just in, at that time,
wasn't thinking of it that way.

All I thought was, "I just wanna know
one other person that's my age that I

can talk to about this and just say,
'This is hard,' or 'This sucks.'"

But I didn't know anyone, and even 10
years ago, I think the community that

exists online is different, right?

It's expanded.

There's so many people
sharing their experiences.

At that time, I don't remember seeing a
bunch of people talking about diabetes,

on Instagram or Facebook or anywhere.

But what I did do is I went on Instagram,
and I think at that time, hashtags were

still really popular, so I hashtagged
diabetes, and someone's account came

up, and they looked around my age.

They were a health coach, and I d- I also
didn't know what health coaching was at

all, so I was like, I'm just gonna message
this person, see what happens." And I

actually joined an online, program, but
it was community-based, so there was other

clients in there from all over the US.

They were around my age.

So it was the first time that I was
truly connecting with people and

having conversations, and I loved it.

I fell in love with that feeling.

It felt so good.

Even when I talk about it now, I think I
get goosebumps, 'cause it was such a, an

eye-opening experience for me that I truly
wasn't alone, and that's the first time

that I wasn't thinking about living with
diabetes as something that's isolating.

I was like, "Wow, this is
something that I can totally do.

Other people are doing it, and they're
doing cool stuff, and they're not

letting it put a pause on things that
they wanna do." So long story short

there, yeah, it took me three years
to get there, but from there, it

catapulted me into what my career is now
and what, how I experience community.

And that health coach is
still my friend today.

That's one of the people that I text all
the time, and we actually have worked

together in different capacities and
work together today at the Diabetes Link.

so it's very cool to, to think about
how that one connection or that

one moment of coming outside of my
comfort zone to connect with someone

really became, a part of my job and
part of what I love about living with

diabetes, is the community piece.

What do you hear from young adults
who maybe feel overwhelmed by

diabetes or just simply don't wanna
talk about it in relation to what

you're doing around community?

So here at the Diabetes Link, we
have community in different ways.

So whether that's in-person community
or online community, and Really what

young adults, it just seems like they're
craving this like sense of Belonging,

and whatever that looks like, and also
where it's meeting them where they're at.

Maybe today you want that community that's
in person, you wanna connect with people.

But maybe in a, a different season
of your life, that's not what

you want community to be for you.

so what we've found with our
young adults is they want things

that are low-key, honest, and
something that actually helps them.

And when I say helps them, I think in
diabetes we think a lot about, education

is teaching me something, right?

And with diabetes, we get talked to a lot.

A lot of information's coming
at us, whether it's from our

care team or different spaces.

There's a lot coming at us.

But what people want is, like,
how can something help me?

How can this be real and relevant?

And an example I'll give is maybe you
wanna try a pump for the first time, and

you've talked about it with your care
team, but you've never talked with another

young adult maybe your age to ask them,
"How is the pump situation when you're in

college, or when you're going to a party?

is it fine?

Do you like it?

Do you play sports?

What does that feel like?" And those
types of conversations that are real and

authentic is truly what ties in that sense
of belonging so that you can have true

conversations about what's important.

You also mentioned all the different
transitions that happen in young

adulthood, and I think there's some common
ones that many of us can think of, right?

Switching, aging into a different
school, or switching colleges,

or moving away from home.

Are there some transitions that maybe
aren't so quick to come to mind that

you're learning about and learning
to be aware of through your work

at the Link with the young adults?

Yes, that's such a great question.

Even just this week, this is something
I didn't think about, but a lot of our

young adults were supporting each other,
talking about getting a driver's license.

And I was diagnosed after I already
had my license, so I didn't think

about it too much, but a lot of the
young adults were sharing some fears

around managing diabetes, driving,
maybe driving far distances, what that

looks like, what the process is like.

Are they allowed to get a license?

there were so many questions that are
coming up, and those are things that

for maybe someone who doesn't live
with diabetes, it's such, a day-to-day,

something they don't even think about.

They just jump in the car, and
they go wherever they're going.

But when you have diabetes, yeah,
you might have to think about,

do I have snacks in the car?

Do people need to know
where I'm driving to?

There's some other layers
and thought process there.

So within, yeah, some of those
bigger transitions, maybe it's

getting your first job, starting a
family, going to your wedding day.

I recently had a conversation with
a young adult talking about, her

anxieties around just going to her
own wedding, what that looks like, how

she's gonna manage her blood sugars.

Is it gonna be on the
back burner that day?

Is she gonna have a plan?

So there's so many transitions,
especially from those teen years from

going to an interview to advocating
for yourself at a doctor's appointment

on your own without your parents.

a lot of what we hear and a lot of
what our young adults talk about is

that transition, especially from high
school into whatever's next, whether

that's college, or maybe it's going to
your first job, going to trade school,

whatever that next step is, or traveling.

I feel like that piece,
comes up over and over again.

Let, let's talk a little
bit about that, right?

When people hear diabetes community,
they, often kinda picture something

more formal, like a big formal
support group or a, a room full

of people talking about diabetes.

But that's really only one version, right?

can we start with maybe some
of these big misconceptions?

What are some of the misconceptions
about community, and conversely,

what can it actually look like
for a young adult with T1D?

Maybe we all, when we think of support
groups, think of, people sitting

in a circle, and there's maybe, a
facilitator, and you're nervous.

"When are they gonna call on me? What
do I have to talk about?" and that's

traditionally maybe what supports
groups used to look like or feel like.

But yeah, it has changed a lot, and I
think the coolest part about Community

is thinking about what it can be
for you and what you actually want.

But I'd say some of the mis- big
misconceptions are definitely, yes,

that setting of, sitting in a circle,
or maybe you're having to chat with a

caregiver in order to, get to community,
or that community has to be this big

commitment, or people may think that
sometimes when we think of community,

it has to be more than one person, and I
think that could be a barrier in itself.

And for sure, I think, too, you might go
online and see all these people hanging

out and doing all these cool things,
but it really doesn't have to be that.

so I would say if you're sitting and
you're listening and you're like, "Woo,

all those things overwhelmed me," or,
"I'm not, I'm still not understanding

what community can mean for me," I would
say, the biggest, guidance I'd give is to

sit and just ask yourself what's missing.

like I talked about earlier
in this episode, I was missing

just knowing one other person.

All I wanted was to know one person.

I didn't even know if we were gonna be
friends, but I just wanted to know that

someone else out there existed and maybe
might have some similar experiences as me.

so yes, it can be small.

It can take a small step.

It can be a text message.

It can be if you see someone in line at
a restaurant with a device on, just going

and introducing yourself and saying hello.

Like, all of those actions
are points of community.

so you can really make it, what you
want it to be, but I would say always

think about what's missing and what
do you need to lean on right now.

And again, no commitment.

Community doesn't have to be
something you do every Friday,

for the rest of your life.

It could be something that you jump in
when you want to and jump out when you're

focused on different areas of your life.

The Diabetes Link has specialized,
making communities for young adults feel

like a, a great, safe, useful place.

What would you say, young adults
have taught the organization about

what makes a community feel welcoming
and useful and worth returning to?

I would say if we've learned anything
from our community, it has definitely

been that, one, they're craving community.

That's something that's,
top priority for them.

and also that they want something
that's less structured and less formal,

something that's low-key, meets in
the w- that meets them where they're

at, is honest And it helps them.

I would say that is what they're wanting.

And more recently, I would say that
most of our community is asking for more

opportunities for in-person meetups.

I think we've definitely
provided online community.

People are able, like we said,
to connect on social media

in all these different ways.

but a lot of people are really wanting
that in-person connection, 'cause I think

we can all agree that there's something
special about seeing people in person than

to just seeing them on a screen, right?

We had a young adult who is really
passionate about ceramics, and she

wanted to do a meetup where she
could share that passion of ceramics

and painting with young adults who
live with diabetes in the community.

So she prepped all these bowls,
and they met up together.

They painted bowls together.

They had conversations, and it was,
I feel like the activity was a nice

segue where not so much pressure
and focus has to be about diabetes.

It can be like, let's just do this
new activity together and just

see where our conversations go.

But we all know, if you live with
diabetes, we're gonna be talking about

diabetes because it's fun to talk about.

And I, realize even sometimes with
some of my coworkers who don't live

with diabetes, when we're all hanging
out, they're like, "Wow, you guys

really talk about diabetes a lot."

And I think, it's because it's nice, and
it's refreshing to have, have that space.

And then we've also had
meetups that are intimate.

They're smaller groups, versus we've
had meetups that have had 25 people,

where amongst those 25 people, there's
small groups talking, and people

are chatting or going on walks.

And it, I think, really what we've
found is all of those types of

hangouts or meetups are welcome, but
really what people want is something

that's really low pressure, where
they can come as they are, come when

they want, and leave when they want.

so it also takes away maybe that
structure, like maybe at a support

group at a hospital, where it's
like, "Come from 4:00 to 5:00."

This is like, "Come, hang out. If you like
the vibes and it feels good, stay till

the end." And most people stay till after,
'cause they're having such a good time.

But really just having a space
to do that, I think, they create

their own culture within the group.

So it's been really awesome
to see our young adults lead

the way on these meetups.

Yeah, 100%.

and what I'm hearing is that there's
not necessarily any one size that,

that fits all, and there's a lot of
value in that shared understanding

about diabetes, even if diabetes
isn't the, part of the main activity.

But that still brings people together.

I really love that.

All right.

let's take a quick break here.

When we come back, we're gonna
get a little more practical about

finding your people or even creating
something simple when the community

you need doesn't exist yet.

We'll be right back

One of my favorite things is sharing
a quick story from someone who's

participated in the Blue Circle Health
program, and we have one today from Sarah.

My name is Sarah Nunn.

I am 27, and I was eight years old when
I was diagnosed with type 1 diabetes.

For nearly 20 years, I navigated
the disease with the help of my

doctors, family, and friends, but I
didn't have a community that truly

understood what my life was like.

Like a lot of kids with diabetes, I
didn't have any friends with diabetes or

any chronic illnesses who could relate
to the struggles I had day-to-day.

Growing up, this made it difficult to
connect with people on a deeper level.

Diabetes became a nuisance that I worried
would interfere with my relationships.

When I heard about Blue Circle Health,
I had been struggling with insurance

coverages and getting my medications.

But upon meeting my peer support guide,
Zana, I knew I would be taken care of.

She answered all of my questions
with care and interest.

She, along with most of the Blue Circle
Health team, had diabetes and knew

right away what I was going through.

I immediately felt hopeful
that the team could give me the

confidence to continue my journey.

She connected me with other team
members who helped me navigate

everything from insurance to nutrition.

The prescription assistance program was
a huge help with getting my supplies, but

the most helpful thing overall was having
a community of people I could go to for

guidance and support with no judgment.

Blue Circle Health is an amazing
program that I couldn't be more

grateful for, and I wish more people
knew about it so it could help

them like its programs helped me.

All right.

Welcome back.

We've talked about how many
different forms community can take.

Now let's get into helping
someone figure out where to begin.

So can you give us a quick tour of
some of the ways that the Diabetes

Link helps young, adults connect?

Do that in a lot of different ways.

So We help students, again,
that are on college campuses.

Maybe they are in high school and
they're planning to head off to college

next year, and they're like, "I don't
even know where I need to start."

maybe they're not even looking for
a community, but they're like, "Does

community already exist on this campus?

Is there any kind of programs on campus?

How do I prepare?

What do I need to know?" So we actually
have a program called Off to College that

helps students with answering some of
those questions so they feel prepared.

And then once they're feeling confident,
we also always let students know, "Hey,

if you go to school, and you start
school, and you meet someone, and you

wanna join a club, or you wanna start
a club, or you haven't met anyone, but

you want to meet someone, we can help
you through that process and let you

know what that looks like, and connect
you with other students at other college

campuses who are in the same shoes
as you or asking the same questions."

And I really think that type of community
that's beyond the campus, it's to

other campuses and to other students,
helps people feel less alone again.

But also, it helps them know that they
can lean onto something when things

feel scary or they're unsure, they
can lean on some sort of community.

So that's one way.

And then we talked a little bit about this
online community, and I know it sounds

like, whoa, what's this crazy universe?

What is an online community,
and what does that even mean?

So we use a platform called Discord,
and we found that our young adults

are very familiar with Discord because
people use it for gaming, but also a

lot of professors use it for different
activities in college campuses, whether

it's, group projects or group chats.

So we have created this online
community, and it's almost broken up

into different categories so that people
can go into these, sub conversations.

So one of them might be resources.

You go in there and people are sharing
different resources or programs

that exist, like Blue Circle Health.

we can share different things in there.

And then we also do activities in there.

So we know that maybe not everyone has
the luxury of knowing someone in person

or has that opportunity to know someone
in person that lives with diabetes, so

within our online community, we offer,
game nights, and hangouts, and coffee

hangouts so that people can still feel
connected as much as they can online.

And again, there's no commitment, and
you can join an online community, and

you can chat, ask questions, or you
can be a silent observer and just be

listening and seeing what people are
talking about, maybe vibe checking if

it's a place that you wanna hang out.

But what I've noticed, especially with
the online community It's less that these

people are just like hanging out in there.

It's more so people jump in when they
have a question or they want some kind

of connection, and then they jump out

The organization has evolved a lot, right?

Can you, and you probably were going here
anyway before I jumped in to interrupt,

but let's talk about some ways where
maybe people who are not at school or not

interested in being students, are still
finding ways to connect through The Link.

Yeah.

So Discord is definitely, and our
online community is, exactly for that.

We noticed that, yeah, not everyone's
a student, so how can we build a

community where anyone can go in?

And we even have channels in
there that are adulting, so people

can talk about some of those big
transitions, and what does that even

mean, and what does that look like?

Not everyone wants to go to college.

Not everyone has the opportunity
to attend college, and they're

still juggling similar challenges,
and they're still craving that

connection with other young adults.

So really be- in everything that we
do, I would say probably our Chapter

network is the only one that's very
specific to college students, but

our online community is for anyone.

And then especially these in-person
meetups, we wanted them to be something

for, yes, maybe some of our students
that have gone through our programming

can go to after they graduate, but
we also wanted it to be somewhere

where anyone is welcome to have a
touchpoint and have a connection, and

that's why we don't have an agenda.

There's not one type of
person that's invited.

There isn't a template for them to follow
around community, around connection.

we just want them to have the spaces
and the opportunities to connect, so

really in everything that we do in our
programming, and something different

that we're doing now that we've expanded
our reach and expanded our community,

is that now our programming that we're
connecting is coming from young adults.

we're truly asking them, "What's
important to you right now?

What do you care about?" "What's
relevant in your life?" Or "Where's

there missing gaps, and how can we as
an organization support you in that

or support what's important to you?"
And I think that's something really

cool that even in the last couple
years that I've worked at the Diabetes

Link, is to see that come to life.

you mentioned one of the, the key
turning points in your life with

diabetes and finding community was
reaching out to someone on Instagram.

But reaching out to a stranger
can feel pretty awkward, right?

What, can you offer some ways that,
what might a simple low-pressure

invitation actually sound like, or
maybe what did you even say when you

reached out to that person on Instagram?

Yeah.

That's such a good point.

It can definitely, it can
be intimidating, right?

Even if it might seem like something
small, like sending a DM on Instagram

can still feel intimidating, 'cause
you might get in your head about it.

"Are they gonna respond? What do
I say? Is this making someone feel

pressured to be my friend when
I just wanna, chat with them?"

and I think at the end of the day, I
can't remember exactly what I said,

but I'm sure it was along the lines of
something like, "Hey, I have diabetes.

I saw that you have diabetes."
"Can we talk?" 'Cause that's truly

what I, I needed at the time.

And to your point, yes, it can feel
awkward, but I always tell myself

that the worst thing that can
happen is no response, or someone

says no, or maybe not right now.

But even in that, it doesn't mean that
the door to community is closing, right?

It might push you to connect with
someone else, or you might bump

into someone, or you might get
invited to some type of meetup.

Also, if you have met someone maybe,
or you bumped into someone, you

guys exchanged numbers, but it's
n- hasn't gone beyond that, that's

an opportunity also just to text
someone and just see how that goes.

And it could be a casual, "Let's go
for a walk," or, "Let's grab a coffee,"

or, "Let's chat for a few minutes.

I wanted to ask you something."

I love that.

Those are very wise words, very well said.

All right, let's
fast-forward a little bit.

Someone has connected with people.

They are in community, whatever
that means for them at that time

What should someone look for in a
healthy and welcoming community?

And, maybe what are some signs
that it's not a great fit, right?

and I think this can feel especially
important online, where personal

experiences and medical information
sometimes get mixed together.

how can people protect their
privacy, their boundaries, and maybe

most importantly, their energy?

That's such a good question.

I think that's so important, especially
like you're saying, it does get blended,

the medical and… Because what we're
dealing with is something medical, but

also these connections we're making, maybe
they're not medical professionals, right?

so a few things to look for.

One, this is more of a gut check
that I always do with myself, is

before I'm gonna engage in whatever
community looks like for me, I

always sit with myself and check in.

Like, how do I feel before?

Am I anxious?

Am I nervous about this?

Am I excited?

How do I feel during
these interactions, right?

In the online community,
do I feel good in here?

Or if it's an in-person meetup, do I
feel comfortable in these conversations?

Do I feel respected?

Are things aligning with me?

Do I like the diversity
and conversation here?

And then asking yourself after,
like, how did you feel after?

Did it feel like your cup got filled,
or do you feel drained, right?

Is your energy… D- Was
that exhausting for you?

And I think that's just a good gut check
in general of, figuring out the places you

wanna be in and the ones that feel good.

But definitely making sure, yes,
your boundaries, you feel respected.

I always think, something really
important in these spaces is just

diversity in experiences, but also
diversity in conversation, right?

I think that's really important, too.

If there's a local community in
your city and there's a meetup

and you attend it, it wasn't your
favorite, didn't feel good, you could

always start something on your own.

Or if you connected with one person
there and maybe not the whole group,

you can still meet up with that
person and do something different.

Yeah.

Great.

Val, as we begin to wrap up here, if
you could go back and speak to yourself

shortly after diagnosis, what would
you want younger you to know about?

You don't have to figure
it all out by yourself.

It's okay to ask for support, and
it's okay to not have all the answers

and to take everything day by day.

And when you lean on community, it can
truly change everything for you, and

that is what happened to me, and I never
thought that was gonna be possible.

But truly leaning on community has changed
my whole experience with diabetes, and

I hope that everyone listening has that
opportunity as well to make, whether it's

one friend, a group chat that you join,
an in-person meetup that you go to for

the first time, that experience of that
sense of belonging and that you don't

have to go through it alone, and you're
not going through it alone, can really

change, the way you show up the next day.

Beautiful.

So well done.

All right, last question.

Where can listeners learn more
about the resources and connections

available through the Diabetes Link?

You can find us in a
lot of different spaces.

So you can find us on our
website, thediabeteslink.org.

This is a great place to know
what events are happening in

our online community, in person.

this is where you can find free
resources that are made by young

adults, also by clinicians.

this is our hub of all things, so
feel free to check out our website.

Also, our Instagram page

Val, thank you so much
for coming on the show.

A- again, it was just really a pleasure
to chat more with you, and thank you

for opening up about your story and
all the, the great connections and

community that you've experienced and
have then turned into, doing all you

can to build that for everyone else.

Thank you.

Thank you, Scott.

Thanks for having me.

This was so fun.

Thank you.

One of the things that really stood
out to me in this conversation is how

community isn't one size fits all.

Someone who grew up with type 1
diabetes may want something different

from someone who was diagnosed as a
young adult, and what feels helpful

may change as you leave home, finish
school, begin working, or simply

enter another stage or season of life.

If you're curious about community
but don't know where to begin, start

by asking yourself what kind of
connection would be helpful right

now, and then take one small step.

Maybe explore one of the Diabetes
Links resources, look for a local or

online opportunity, or send a text
to someone who might understand.

We'll be sure to include links to
the Diabetes Link and its community

resources in the show notes, and until
next time, keep living well with T1D.