Is Anything Real? is a podcast about questioning the things we've collectively decided are true.
Each week, executive coach and author Adam W. Barney sits down with founders, executives, authors, creators and other interesting humans to get underneath the assumptions, conventional wisdom and occasionally ridiculous rules we use to make sense of work, leadership, success and our lives.
The conversations are prepared but unscripted. No rehearsed talking points. No pretending there's a neat answer when there isn't one. Just curiosity, honest disagreement, lived experience and the occasional detour that turns out to be more interesting than the question Adam planned to ask.
Because sometimes the most useful question is the simplest one: Is any of this actually real?
New episodes every Wednesday.
Here's a myth that quietly wrecks families.
If you really love someone,
you should be able to care for them yourself.
Not really.
That sounds noble.
Until someone is exhausted, unsafe, resentful,
financially overwhelmed, medically confused,
and Googling long-term care options at midnight
while pretending they're fine.
Love is actually not proven
by running yourself into the ground.
And sometimes the most loving thing you can do
is just simply admit we need help,
and we need help we can actually trust.
Welcome back to "Is Anything Real?",
the reality-first leadership show
where we test advice,
publish the receipts,
and ship what actually works under pressure.
I'm Adam W. Barney,
transition leadership coach,
author of Make Your Own Glass Half Full,
and builder of a platform where I help leaders
rebuild their operating system
when the tools that got them here stop working.
Today's guest is Lindsay Friedman,
founder of LTCareNav
and host of "The Care Compass".
Lindsay is working on one of the most human,
broken, and under-discussed systems in this country,
long-term care.
Her work helps families connect with vetted care providers.
Not random listings,
not pay-to-play lead-gen chaos,
but real support in moments where families are usually
overwhelmed, scared, and simply moving fast.
And what I love about Lindsay's philosophy is this:
She doesn't just talk about caregiving as heroic martyrs.
She talks about care partners.
Because the person needing care matters
and the person giving care matters too.
Lindsay, welcome to the show.
Thank you so much for having me
and for that fantastic introduction.
I'm excited, Lindsay.
And I knew this conversation would truly matter
when you said outside help is not failure.
It actually might be
the only way to keep everyone safe and human.
Absolutely.
All right, let's start with the myth here.
Lindsay, what's the myth about caregiving or long-term care
that makes you want to flip a table,
let's say gently,
because we both have pets and aging parents nearby.
So I think the first myth,
and this is where the whole system collapses,
is that some system, some insurance, Medicare,
something will pay for long-term care.
And then every myth that comes after that
all comes back to the fact that our system
is not meant to give us support
and long-term care is very costly to bring in outside care.
And then when you don't,
it ends up impacting the family
even more than the care recipient.
Yeah, yeah.
And I think it's because most families
don't meet the long-term care system calmly, also.
Right?
They meet in a crisis:
diagnosis lands, a parent falls,
the spouse declines,
hospital discharge is suddenly coming,
and then everyone has to become an expert
in home care, assisted living,
insurance, medical equipment,
family dynamics, provider quality, transportation,
let's say medication, finances,
and also emotional guilt by, let's say, Thursday.
And that's absolutely absurd.
And yet we act like families should just figure it out.
And Lindsay, I know I mentioned I lived
a version of this in my own family.
You know, my mom passed away from bulbar-onset ALS
about 12 years ago,
and we were very lucky,
and I use that word very intentionally,
because her best friend from college, my uncle,
moved from Illinois to Massachusetts
to help my father care for her at home.
That was a huge gift.
Right?
She was able to remain in the house I grew up in.
She moved from the upstairs bedroom to a family room downstairs.
She passed at home in her chair in a familiar place.
And that's what many families would want.
But not many have that kind of support system.
And if they don't, I truly know it doesn't mean they failed.
It just means they need a system
that doesn't punish them for being human.
That said, though, what are families
usually least prepared for
when long-term care suddenly does become real?
I think one of the things that you just mentioned
about all of the tasks that go with it
is I think people,
when they're thinking about caregiving,
goes back to the,
oh well, what are you doing?
You're sitting with the person,
you're making sure they get their medication.
And people who haven't had true deep caregiving experiences
think very peripherally of, like,
oh, what does this possibly mean?
And even as somebody who worked as a caregiver,
I often talk about it,
that I worked years as a professional caregiver,
and I truly didn't understand what it meant
to be a family caregiver until I did it myself.
Because you are not just providing physical care,
which is much more personal and invasive
than you're even thinking.
Most people think, oh, I'll give them medication, right.
You're not thinking about the toileting,
the incontinence, the showering,
what it's like to actually
help people move and keep along through their day.
That is only one piece of caregiving.
When you are a family caregiver, like you said,
insurance, doctor's appointments, driving,
managing somebody else's life and finances,
and every bit that goes on it,
you become a little bit of wearing a million hats.
And the truth is,
not one person is prepared to do it all
because we don't have all those skill sets.
We're not supposed to.
And now all of a sudden we're taking on something
that is bigger than we could ever imagine.
And we are not trained to do that,
nor should we be expected
to be able to juggle so many things.
Yeah, yeah.
And I think that's, that's the first receipt here, right?
Care planning.
It's not a niche issue.
Right.
It's actually maybe surprisingly
one of the most predictable crises
most families still pretend
will somehow be spontaneous and manageable.
You used a phrase, rather.
I want to make the center of this episode, right.
Care partner.
And that language matters
because the traditional caregiver story
can become dangerous.
It praises self-sacrifice
until the person giving care
has no body left,
no patience left,
no identity left,
and no resentment-free relationship left.
And then everyone acts surprised
when they flame out or burn out.
Right.
So, define this for us.
Let's say what changes when we think
in terms of care partner
instead of caregiver.
So when we hear the word give, right.
What we're doing is
we're giving, we're giving, we're giving, we're giving,
which means somebody is taking.
Right.
And it sounds very one-sided.
And I think a lot of caregivers get to the point
where they're just giving and that they forgot that
the person that they're giving this care to
is their mom, their friend, their husband, their spouse.
They were a person that you had a relationship with
prior to this care journey.
And when we start to rethink it
as a partner in a relationship.
Right.
The person receiving the care who needs a hand
does not want this from you.
They don't, in most cases.
Right.
I know there's going to be people who are listening
that are like,
Oh no, my mom would do that.
Right.
I get that.
Right.
I just had a conversation with someone.
Some people are takers, right.
So let's just take it on average,
the person that you're providing care for
doesn't really want the care.
They wish they could do this on their own.
And what you need to look at it is,
I love you,
and I'm going to help you pick up the pieces.
I'm going to partner with you.
I'm going to give you the ability to do what you can
and then the things you can't do,
I'm going to step in and help you,
but make sure there's still a relationship
and that the person you're giving care to,
or you're providing care for, and with,
is able to give you something in return.
It could be conversation,
it could be a relationship.
So making sure core pieces
of what was there prior staying in place
will allow you to be a partner with them
in this care journey
versus somebody who's giving
and then at some point will feel like
they have dumped everything they have
and are getting nothing in return
except that point of exhaustion,
and as you said, resentment.
Well, and that distinction is huge because care,
no matter what it is,
but especially in that sense,
is relational.
Right.
It's not one human
becoming the infrastructure for another human.
And I think maybe a lot of families actually
confuse love with over-functioning.
But care without that support
becomes a debt
and the bank eventually collects,
whether it's that burnout, flame out,
resentment, unsafe decisions, or family fracture.
And also, I would say plainly, for anyone listening,
you and I both agree using outside care is not failure.
And I think that's, I think actually
failure is pretending everything is fine
because guilt has the steering wheel
and that's where a lot of emotional damage help,
you know, happens.
How do you help families
release the shame around needing outside support?
I think it's really hard to get them there.
Once you have guilt, if that's who you are,
it's going to be a hard process.
But I think it's almost, I like to look at it,
it's like when we raise children, right?
Most of us are sending our kids away to school to be educated.
We send them to a babysitter, or grandma and grandpa,
so we can take time for ourselves.
We do all of these different things,
I mean, to allow other people
to take part in raising and helping
bring up our children
so we have moments to ourselves.
Why wouldn't we do that for the person we're caring for?
These are our children that were like,
we will send you away for eight hours a day
because I do not have the skill set
to teach you, to do all these things during the day,
to make you a better person.
But for our loved ones, our parents were like,
oh, I can't possibly have anyone help me.
I think we just need to be very practical
about what we're doing.
And everybody just has to understand
that you are entitled to take care of you first.
The oxygen mask thing, right?
That is there for a reason.
Because if you don't take care of you,
which could mean bringing in somebody else
so you can do something
as simple as watch a television show.
and sit down,
then you're not going to be able to care for the person.
So the best thing for them
is taking care of yourself in the process, as well.
Yeah, yeah.
The question isn't
can we keep pretending we can handle this.
The question really is
what setup protects dignity, safety, and relationship.
The relationship for everyone involved.
But I'd also love to get into the provider sidebecause
this is where my old marketing brain
starts really twitching.
You told me that a lot of the matching and lead generation sites
say they vet providers,
but when you actually look under the hood,
many are just pulling from Google places
or functioning as pay-to-play directories.
You know, it's not like when a family is searching for care,
they're casually shopping for a blender.
They're often, as we said earlier,
scared, tired, navigating a crisis.
They might not know what good looks like.
And if the platform they trust is ranking based on payment,
that's not guidance, it's monetized confusion.
What's broken about the way families are matched
with long term care providers right now?
I think one of the bigger issues with the systems is that
when you go to a lot of them
and you put your name in to get some help,
you're going to get bombarded
by lots and lots of people who do the same thing.
You're already tired,
your phone's already ringing,
you're already confused of what's happening.
So really the phone calls aren't helpful.
And their phone calls.
Really understanding what you need.
Right?
What do you actually need in your situation?
Is home care the answer?
Is it really a senior care advisor
who can help you understand your situation better?
Is it assisted living?
But really having somebody who can help understand that,
which is what we really do
with our matching system and our introductions,
is identifying what you actually need.
Because that's a big part of it is
families don't understand what they even need.
And because there's so much going on,
so you're not sure what the right option is.
And so getting a lot of different phone calls isn't helpful.
Figuring out what you need is the first step.
And then having somebody who's actually vetted
who's a good match for you,
having somebody who calls who sounds amazing,
and they may be amazing, but you can't afford them.
Right.
It is more discouraging than helpful.
So we wanted to really take an approach of
truly vetted, one on one matches
that make sense for you, your family, your situation.
And we typically start with a senior care advisor as your match
who can help you for free
because it's really important
that you understand where you are
and I understand caregiving and care in general is expensive.
So we really try to be a nice place
where you can learn about your options
and make your decisions without having to pay for anything.
And, I mean, I will add in there, Lindsay,
of course, a plug for your podcast,
"The Care Company",
because it's super important.
You bring providers on
and let families hear from them directly
and that's trust building, it's transparency,
and it's a way to move from marketing claim to real signals here.
Because I think if the business model rewards
whoever pays to be seen,
families need to know that
before they actually mistake visibility for quality.
And I want to connect this to leadership
because people may not think of long term care
as leadership, but it absolutely is.
A family navigating care
is suddenly a leadership team.
It's the stakeholders, those emotions,
the constraints, the money, the history,
the sibling conflicts with different levels of availability.
Maybe a parent who doesn't actually want help.
There could be a spouse
who is exhausted and still insisting they're fine.
That's leadership under pressure
in so many different lenses.
And I have to say also,
my father had hydrocephalus a couple years ago.
We very quickly had to navigate into this world
and we're a family with resources and capable people,
and it still was truly overwhelming.
So, what do you see time and time again maybe
makes a family care decision go sideways?
Emotion and crisis.
And actually those things make decisions
in every aspect of our lives go sideways.
Right.
And so it's no different here.
When there is an emergency,
when there's a lot of fear feelings,
we're going to make decisions out of feelings,
whether instead of logic.
That's the one thing that's interesting
about long term care planning is that
it doesn't have to happen this way.
We are all guaranteed to age or to get sick.
And if not, the alternative is less appealing,
I'm telling you, than aging.
Right.
There's two choices,
and we don't have the conversations early enough.
We don't have to have these moments of crisis.
Well, obviously you've had your experiences,
but you probably are talking to friends now who are going,
oh my gosh, you should have seen what my mom did the other day.
Or, man, my dad just told me that same story for the 50th time.
I think he's getting confused.
We have these conversations with ourselves
so early in the aging process.
That first moment you see something as,
that is the moment to plan,
you're probably already too late.
The plans before that.
Right?
Where you could have really great conversations about it
is what avoids the crisis and the emotion.
Because emotion comes
when you already feel the aging,
when you already see yourself changing for the parent.
It's when you can have it before that
you can have more logical conversations.
Right.
And that's just human nature.
And that's what long term care planning is,
fighting against human nature.
But it's, it's such an easy.
Well, it's not easy to do the planning,
but it's the solution that is there
in front of all of us.
Yeah, yeah.
And that gets into one answer,
I imagine there where, you know,
families avoid that hard conversation
until urgency makes the decision for them.
And that's so true in business as well, right?
Avoided conversations become expensive conversations.
But in care, they actually become
potentially catastrophic conversations, right?
Absolutely.
And costly.
There's an emotional messiness here also.
Right.
You know, there can be love and frustration mixed together,
gratitude and resentment,
tenderness and anger.
You know, people feel terrible, I guess,
maybe admitting that, you know,
But the feelings are not the failure.
It's creating a care situation where
nobody is allowed to tell the truth
until they break.
What emotions do you see care partners
most often feel actually ashamed of?
So I help, admin a caregiver group
and we have a lot of people who post anonymously
these feelings that they feel horrible about.
But it's almost some of them are truly saying,
I just wish this was over.
Well, we all know
that there's only one way of over, right?
And these are things that anonymously,
we're really trying to say,
these are okay feelings to have, right?
Don't act on them.
But these are,
the type of overwhelm that can hit a care partner
is so extreme that we're seeing people say things of,
I need this to be over.
I'm done with this.
I don't even like my mom.
Or I feel like a parent.
And I think that's always really an interesting one
when you say I feel like a parent, your parent,
you've just said you've lost your relationship.
Yep, yep, yep and yep.
Well, human feelings, you know, don't cancel love.
They usually tell us
where the care system needs more support.
Right.
I want to get, you know, quickly, Lindsay,
into maybe one move our listeners can run this week,
and I would call it, let's say,
The Care Partner Reset.
And this is for anyone currently in care,
anticipating care,
or pretending this conversation is for other families
while quietly realizing it's not.
And it just starts with four simple questions.
The first one:
what are we assuming one person will carry?
Make sure you name it.
Right.
What is it?
The second question:
is that actually safe and sustainable?
We don't need to be heroic,
it doesn't need to be ideal.
There's nothing perfect in this world.
That needs to be safe and sustainable.
The third being, where do we need outside help
before resentment or risk becomes the forcing function?
That could be home care, transportation,
or simply a vetted provider conversation.
And then the fourth:
what do we do if we treated
the care partner's well being
as part of the care plan
simply because it is.
But Lindsey, what would you add to that simple reset there?
Have an honest conversation with yourself.
And it kind of goes back to your second question.
But really it is okay to say, I can't do all of this.
There should be no guilt.
There should be no shame.
That is a really great thing to say,
I need to take this off of my plate.
What can I take off of my plate to make everything better?
And then figure out
who that person in your life is
that can do that.
And I know, I hear a lot of families go,
well, my sister will never help, I've asked her.
Figure out what that one thing is.
And there are resources you are probably not available,
social services, nonprofits.
And figure out what you can do because
if you don't take care of you, you'll break.
And then what happens to the person you're caring for?
Right, right.
You know, and that is so essential
because if your only care plan
protects the person receiving the care,
it's actually incomplete.
Right.
The care partner or partners are part of the system there.
But Lindsey, I think you how we end,
you know, after all of this,
whether it's broken care systems, provider vetting,
you know,
care partners, family guilt,
safety and just dignity,
is anything real in this space?
I think the love that we have
that makes us want to care for the person
that we are caring for
is what we have to go back to,
and really understanding why we've chosen
to be a care partner or taken that role on,
and realizing that everybody deserves care,
and everyone deserves kindness,
including the care partner.
Yep.
And, and what feels real to me is the fact that, you know,
love needs that infrastructure.
Right?
And it's not because love is weak.
It's because love is too important to be left unsupported.
But, you Lindsay, where can folks find you,
learn more about LTCareNav,
and listen to "The Care Compass"?
If you go to
ltcarenav.com/podcasts
with an S at the end,
you can actually find "The Care Compass"
and you can find other episodes that I've been on,
plus giving away free ebooks.
And it's a great way to just kind of engage.
And you can send me a message, as well,
because we are here to support you.
That's fantastic.
Well, of course, link to those in the show notes below.
But, you know,
for anyone listening who's navigating this now,
needing help does not mean you failed your family.
It actually just may finally mean
you're finally telling the truth
soon enough to protect them.
So, you know, if this episode hit,
I would challenge you to send it to someone
who's quietly carrying too much
and calling it love.
And, of course,
if you're navigating a leadership transition,
whether it's through caregiving pressure,
the moment where simply your old tools just stop working,
there's also a 20-minute foundation call with me
linked in the show notes below.
But Lindsay, thank you for doing this work.
This one is deeply real.
And for our listeners, until next time,
stay grounded,
stay human,
and keep questioning the noise.
But thanks, Lindsay.
Thank you.