Waldenstrom Unplugged : Series Trailer

Waldenstrom Unplugged: Words Matter brings together expert clinical insight and lived patient experience to make Waldenstrom macroglobulinemia (WM) clearer, less isolating, and easier to navigate.

Here’s a quick taste of what’s coming up in this series. Be sure to hit Follow or Subscribe in your podcast app so you never miss an episode when we launch on September 15th.

If you have a question for Shirley or Bob, you'd like featured on an episode, please email: [e-mail]

 
WITH SUPPORT FROM IWMF
About the IWMF The International Waldenstrom Macroglobulinemia Foundation is dedicated to supporting and educating everyone affected by Waldenstrom macroglobulinemia while advancing the search for better treatments and, ultimately, a cure.
Please visit: https://iwmf.com/

YOUR HOSTS
Professor Shirley D’Sa: Professor Shirley D’Sa is a leading haematologist at University College Hospital in London, where she runs a specialist Waldenstrom macroglobulinemia service. She is widely respected for her WM expertise, compassionate care, and commitment to helping patients understand both the science and the lived experience of the condition.

Bob Perry: Bob Perry is a WM patient and advocate who brings warmth, candor, and hard‑won perspective to conversations about diagnosis, treatment, and living well. Drawing on his own journey and his support for fellow patients, he helps translate complex information into practical, relatable guidance

What is Waldenstrom Unplugged : Words Matter?

Bringing together expert clinical insight and lived patient experience to make Waldenstrom macroglobulinemia (WM) clearer, less isolating, and easier to navigate.

Welcome to Waldenstrom Unplugged, Words Matter.

Join leading WM expert, Professor Shirley DeSaw, and

WM patient and advocate Bob Perry as they

make sense of the language, science, and lived

experience of Waldenstrom Macroglobulinemia, or WM.

Together, they'll translate complex medical jargon into clear,

practical conversations to help us better understand and

navigate life with WM.

Let's dive in.

Hello, I'm Professor Shirley DeSaw, a hematologist specializing

in Waldenstrom Macroglobulinemia, or WM.

I've spent many years caring for people with

WM and working to improve how we understand

and treat this rare disease.

And I'm Bob Perry, a WM patient, advocate,

and apparently Shirley's unofficial question master.

I've lived with WM for over a decade,

and I've spoken to hundreds of patients around

the world about their experiences.

Together, we're bringing you Waldenstrom Unplugged, Words Matter,

a podcast for people living with WM, their

families, and anyone who wants to understand this

complicated condition a little better.

In the episodes ahead, we'll unpack the language

and science of WM, diagnosis, symptoms, treatment, new

drugs, research, and the search for a cure.

But we'll also talk about the things that

don't always make it into a medical textbook.

What's it actually like to receive a diagnosis,

living with uncertainty, finding the right information, looking

after your well-being, and making sure that

you don't have to face WM alone?

We'll have conversations with experts, patients, and people

from across the WM community.

And we'll ask the questions that patients really

want answered.

No question is too simple, no question is

too stupid, and we'll try and unpack any

jargon.

So join us for Waldenstrom Unplugged, Words Matter.

Please follow or subscribe wherever you hear your

podcasts, including Spotify, Apple, and YouTube, so that

you're notified of our upcoming content.

Thanks for listening to Waldenstrom Unplugged, Words Matter,

with Shirley Desai and Bob Perry.

This podcast is proudly supported by the International

Waldenstrom Macroglobulinemia Foundation.

For more information and support, please visit iwmf

.com.

That's iwmf.com.